This is Soo not what I wanted to post about Owain, but

I have been hoping to get some more pictures of Owain posted here, but the day keeps getting away from me. He is getting bigger, smiling, babbling. He is a happy little guy & he loves to laugh & has finally become ticklish…I love to tickle my little beastie boys! Everything healed well, and he doesn’t seem like he is in any pain when I grab him under his arms. He is strong & can hold up his head and look around, he even follows me with his eyes as I walk across the room.

He was doing really well for a while, but now I am starting to get nervous.

When Owain came home his oxygen levels were in the low 80s to high 70s. For the past few weeks they bounce from the low 70s to the low 80s & occationally drop into the 60s. Normal blood oxygen is 97-100%. When he was cyanotic & sent to UVA he was at 42%.

The last time he had a peds cardiology appointment I asked, what are the numbers to watch out for when things start to look bad. They say when he is consistently in the 60s. For the past 3 days he has been in the 62-70% range.

They also said that if it happens too soon before he is old enough they will have to do an extra open heart surgery to put in a bigger shunt & then still do the next procedure in Sept or Oct.

I sent his oxygen levels to his patient care coordinator & I am just waiting to see what she says. I am starting to get really scared.

I always have a candle lit for him, if you get a minute please light one so that his O2 levels go back up.

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