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I am Not as Strong as I appear. I enjoy weakness from time to time. We are a homeschooling, special needs family of 6. My 4th son has a Congenital Heart defect, and my oldest has ADHD. I am a survivor of Adultery and mental abuse. I learned that you never really know someone until you are strong enough to stand up and walk away. I love and protect my children, with everything I have. My life might seem unbelievable, but I couldn't make this shit up if I tried! Stick around & let's get to know each other.

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Super Quick Surgery Update!

I can’t believe how much time has gone by since his surgery, and since we have been home!

Owain is doing great, we were sent home only 6 days post fontan. Unbelieveable!

His brothers planned a surprise party for him, decorated the living room and gathered all of his favorite things. Everyone was full of smiles and he soaked up all the love that his brothers were passing out!

He has had some good days, some bad days and some super awesome days. Today is not so much a bad day, as a not so great day. He is moody, irritable and seems to be more uncomfortable today than he has been in days. Lots of tossing and turning last night, so it may just be that he didn’t get enough sleep last night.

We were home last Thursday and he ended the night with a fever. After talking with peds cardiology on the phone, they said that it was natural to have a fever after surgery and without seeing any signs of infection that he was OK. The next day when looking at his dressing, it looked like part of his incision was infected. A quick trip to clinic and it was determined that it was just oozing, but not infected. Great news, no infection and we were off to see Cars 2 with all 5 kids.

For the most part, it is hard to even tell that he had open heart surgery less than 2 weeks ago! It is hard to keep him still and his movements hardly make me think of someone who just had their chest cut open. I checked on him the other night and he was fast asleep on his chest, what an amazing little guy he is!

He is on some lasix, aldactone and motrin as needed for pain. I stopped giving him tylenol the other day and he didn’t even notice. He was getting tylenol and motrin alternating every 3 hours for most of the time he was in the hospital and I kept that up when we got home and increased the time in between until I cut out the tylenol altogether. Now he is getting the motrin every 6-8 hours as needed and is doing great with the pain. He casually said “ouch, this hurts” to me yesterday and pointed to his chest when we were cuddling at bedtime. That has been the first time he said that to me specifically since his surgery. Then he adjusted a bit and said he was fine. Such a brave little guy!

He has a check up with peds cardiology tomorrow afternoon. We have to go get a chest x-ray first to look for fluid around his heart and lungs, and then go over to clinic for the full cardio work-up that is echo, ekg, pulse-ox & vitals, the usual. Hopefully everything will look great! He is having a little bit of shortness of breath today, which could mean fluid is building up, but it could be his asthma acting up as well. It is not too alarming at this point, and we will know more tomorrow.

The Big 3 kids are in NY with my parents so Owain can recover quietly and get all the attention he needs, and little sister is here. She is in Heaven now that he is home and with brothers gone, she has him all to herself. Those two are stuck together, having a great time.

They are laying on the couch together taking a nap, and I am going to go join them 😉

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6 Responses to Super Quick Surgery Update!

  1. Alison Shaffer on July 7, 2011 at 5:22 pm

    glad to read the good news. hope all are well.
    I still remember your good blog advice when I first started my blog. You have a wonderful family.
    thanks!
    Alison Shaffer recently posted..New! Velveeta Cheesy Skillets Dinner Kits are cooking up in my kitchenMy Profile

  2. Angela (Toucan Scraps) on July 6, 2011 at 5:03 pm

    he’s so wonderful. hope you enjoy the film
    Angela (Toucan Scraps) recently posted..Pump and SensorMy Profile

  3. Jen on July 6, 2011 at 4:34 pm

    SO glad he is home and you guys are getting some rest. Keeping you in our prayers! 🙂
    Jen recently posted..Wordy WednesdayMy Profile

  4. Whitney on July 6, 2011 at 4:26 pm

    So glad he’s doing well!

  5. Rebecca on July 6, 2011 at 3:51 pm

    Excellent news, WTG Owain! So happy that he is healing well and that you are all resting a bit easier.
    Rebecca recently posted..A much needed breakMy Profile

  6. Jackelyn on July 6, 2011 at 3:46 pm

    PRAISE GOD! for the short hospital stay after surgery, for the speedy healing and many good and great days, for mommy being able to have help with the big boys, for all the love your beautiful family has and for Owain’s full recovery and a long health filled life!
    Thank you for the updates! Prayers continue!

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