I have looked back over some of my posts from the past few days and they seem to be a bit rambly (if that is a word) and may or may not make any sense. Somehow I am am OK with that, lol. So in keeping up with tired rambling I need to share...Keep Reading Here »
Cath Procedure
Photos from Owain’s Heart Cath
I was too tired to unpack my camera and upload the photos last night, but I manged to get to it today. I wish I would have gotten a few videos as well, he was such a funny little boy. It is interesting how easily he settles in soaks up everything around him. ...Keep Reading Here »
Quick Update on Owain’s Heart Cath with Decisions to be Made
It has been a long day. I didn’t sleep much, or well last night and not that my day is over I don’t have much energy left. Everything went great. We ended up going in much later than scheduled, which made for a long morning for Owain. We were scheduled for 9:30 and it...Keep Reading Here »
Owain’s Heart Cath Monday May 16
I like to think that I have been doing a pretty good job holding myself together. Between his birthday on the 3rd and thinking about his first surgery 3 years ago, and his up coming Heart Cath tomorrow and surgery next month, I have had plenty to freak out over. I have really tried...Keep Reading Here »
Thinking of Baby Owee
Today I was thinking about Wee Nut’s first couple of days and weeks after he came home from the hospital after his first open heart surgery. Today is the anniversary of his failed cath procedure at 6 days old. Dr Limm was hoping that he could go in and put a stent in to...Keep Reading Here »
Thankful Thursday
Happy Thursday Y’all! So I did something really stupid yesterday. I was in the middle of a phone call with the phone company, the kids kept coming in and asking me a million questions, even though the door was closed and I told them I was on the phone, leave me alone for a...Keep Reading Here »
A Year Ago Today My Wee Nut Had His Second Heart Surgery
I didn’t realize until last night when I was think about his surgery last year, that the anniversary of his second surgery was another contributing factor in my feeling down. I think it affected me differently because it was something we had spend months planning. It was so much different than when Owee was...Keep Reading Here »
Owain had his cath procedure today
Things went really well! His heart looks good & he is a good candidate for the next surgery, but we are not in a rush, rush position any more. His doctor said that we might even be able to put off the next surgery until closer to the end of September instead of at...Keep Reading Here »
Moving forward with Owain’s next surgery
I think I feel OK about this. I knew it was coming so I have been trying to prepare myself. Of course I am sad, I am worried, I am scared, but I am OK with it. It has to be done. At least I am TRYING to be OK with this. We had...Keep Reading Here »
Getting better every day!
William insisted that I add a family picture…so here it is! Three very excited big brothers & two very happy & tired parents just a few minutes after Owain’s birth. Lots of changes have happened since last Friday! Friday night when Will got to the hospital to visit they were getting ready to...Keep Reading Here »
Owain is Doing Better
A lot has happened in the past few days. Some good and some not so good. He has been in critical but stable condition for the past few days. We were excited when it was determined that an interventionist could try a cath procedures which is a less invasive procedure. That was scheduled for...Keep Reading Here »
Honey Nut
Honey Nut is the Latest and Last Addition to the Family. She is our 5th Little Nut and our 1st and only Little Girl. She spends her days pretty much running after her brothers and pretending she can talk. She has no trouble being heard around here and loves her big brothers as much as they love her. Right now it is pretty much her job to just hang out and be cute.
Wee Nut
Owain is my 3 year old, my Little Heart Kid & my Hero. He is Double Inlet, Single Ventricle with Pulmonary Atresia and Malpositioned Great Arteries. He has had 3 out of 3 Open Heart surgeries needed to “fix” his heart. The Heart is an amazing thing and I never know what to expect. He also has asthma and we are doing our best to manage that. He finally had his last surgery on June 24th 2011.
Wee Nut and Honey Nut have become a pair of serious partners in crime. The two of them together can cause more trouble than the older three. They keep me on my toes!
Owain is our Miracle Baby. You can read his Congenital Heart Defect Story from the very beginning if you click on his picture.
E Nut
E Nut is 8 and wicked crazy! He is my fearless child and spent much of his life thinking if he could just jump high enough he could fly. If I let him, he would play Wii all day long, that is IF I let him. He has no trouble waking up before 6am and made me a morning person when I never thought I would be. He recently lost his first tooth and FINALLY feels like a Big Kid. E Nut and Wing Nut are the Big Kids around here and while they fight like enemies, they love like brothers.
Thank you for praying!
After his Fontan on June 24th he went home after 6 days! Now we are back in the hospital waiting for fluid to stop draining from around his right lung.
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Little Nut Nut
Little Nut Nut is my 5 year old boy genius and totally freaks me out with the things he can do. What type of child learns to read at 3 years old?!? He is his Big Brothers shadow and wants to do what ever they do. He doesn't have any trouble letting everyone around here know what he thinks, has no inner voice and talks non-stop all day long. If he thinks it, he says it. He says things like "I love life" and "I am made of Awesome" and always makes me smile, even when I don't want to.
Wing Nut
My Wing Nut, 10 years old, is my first born and is a Lego Fanatic. He talks in his sleep about "interesting number combinations" and insists that he is going to work for Lego when he grows up. From the moment he gets the current issue of Lego magazine in the mail, he anticipates the arrival of the next one. He has crazy mood swings, has recently been diagnosed with ADHD but I am not so sure that is correct. He is considered Failure to Thrive and I struggle everyday to get him to gain weight, he keeps getting taller, but not gaining any weight. I think if we can figure out why he his Failure to Thrive, his ADHD will go away.
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