Over the past week many Heart Families, have shared their stories and facts about Congenital Heart Defects to raise awareness of the Number 1 birth defect. Today is the last day of CHD Awareness week, and ends with CHD Awareness Day. We celebrate the amazing Heart and the power behind it. We celebrate CHD...Keep Reading Here »
This post was originally posted last year in May for Owain’s 2nd birthday. It is the story of his birth and the moments following his diagnosis of having a Congenital Heart Defect. I have spent the past week working extra hard to raise awareness of CHDs and how common they are and I think...Keep Reading Here »
Hard to believe it is Thursday already, this week is flying by! I am excited that Mr Wall Nut will be home all weekend and not have to work two jobs! I am so ready for this weekend to get here. I am SO Thankful for all of the help that we got for...Keep Reading Here »
This song always brings up memories of when Owain was born. Without fail, I would hear this song every single day, either on the way into to visit him at UVa or on the way home. And I would loose it every single time, to the point where I couldn’t stop crying and there...Keep Reading Here »
Today is the first day of CHD Awareness Week. This is the week that we spend even more time raising awareness of congenital heart defects. There are events scheduled all over the country this week. Mended Little Hearts of Charlottesville hosted an event today at the University of Virginia. We had a fabulous time!...Keep Reading Here »
The Facts * Congenital heart defects are the most common birth defects in the United States, affecting approximately 1 in every 111 babies each year. Up to 1.3 million Americans alive today have congenital heart defects. Nearly twice as many children die from congenital heart defects in the U.S. than from all forms of...Keep Reading Here »
My house is a mess, I have only cleaned my kitchen once this week. Yesterday I feed my kids lunch on paper towels. These same kids may have gone just a little too long without a bath. The good news is that the sickness has almost completely left The Nut House! Even in the...Keep Reading Here »
I saw this on the Today Show this morning. I love that this is shedding some light on the importance of getting young adults participating in sports screened for CHDs! At the same time, I am disappointed at what the American Heart Association was quoted as saying about screening and the necessity for EKGs....Keep Reading Here »
Mended Little Hearts of Charlottesville invites you to our CHD Awareness Week Event with a Silent Auction Fundraiser and Bake Sale on Monday February 7th to kick off CHD Awareness Week. We will be in the Dining Conference Rooms 1-3 on the 1st floor of the University of Virginia Medical Center from 9:30am-1:30pm. These...Keep Reading Here »
We are finally are starting to shake this sickness that has taken over The Nut House. The first round of antibiotics are done and in the next few days every one will be off of all meds! Including the new meds that Owee has been on since last weekend. I am starting to feel...Keep Reading Here »
Happy Thursday Y’all! I am fairly certain that I have said the before…but in case you are wondering, it is NOT Friday. My kids are slightly confused because I told them this morning that it was Friday, but we have been corrected by Mr Wall Nut who insists that today is actually not Friday,...Keep Reading Here »
Ugh! I can’t believe there is still sickness going around our house! I think we are starting to get better, Owain is definitely much better than he was last night. His fever is way down and he is done throwing himself on the ground crying from discomfort. Tonight Honey Nut was the one who...Keep Reading Here »
Happy Thursday Y’all! I hope everyone is having a great week! I have been busy this week talking to many wonderful shop owners from Etsy. If you missed my post earlier this week, Mended Little Hearts of Charlottesville is having a CHD Awareness Event and Fundraiser on February 7th. We are collecting donations for...Keep Reading Here »
If you look over at the sidebar, you can see that there is information about Mended Little Hearts of Charlottesville. I have been a member for about a year and a half and a co-coordinator for close to a year, 9-10 months or something. Time goes by way too fast for me to remember...Keep Reading Here »
Honey Nut is the Latest and Last Addition to the Family. She is our 5th Little Nut and our 1st and only Little Girl. She spends her days pretty much running after her brothers and pretending she can talk. She has no trouble being heard around here and loves her big brothers as much as they love her. Right now it is pretty much her job to just hang out and be cute.
Owain is my 3 year old, my Little Heart Kid & my Hero. He is Double Inlet, Single Ventricle with Pulmonary Atresia and Malpositioned Great Arteries. He has had 3 out of 3 Open Heart surgeries needed to “fix” his heart. The Heart is an amazing thing and I never know what to expect. He also has asthma and we are doing our best to manage that. He finally had his last surgery on June 24th 2011.
Wee Nut and Honey Nut have become a pair of serious partners in crime. The two of them together can cause more trouble than the older three. They keep me on my toes!
Owain is our Miracle Baby. You can read his Congenital Heart Defect Story from the very beginning if you click on his picture.
E Nut is 8 and wicked crazy! He is my fearless child and spent much of his life thinking if he could just jump high enough he could fly. If I let him, he would play Wii all day long, that is IF I let him. He has no trouble waking up before 6am and made me a morning person when I never thought I would be. He recently lost his first tooth and FINALLY feels like a Big Kid. E Nut and Wing Nut are the Big Kids around here and while they fight like enemies, they love like brothers.
After his Fontan on June 24th he went home after 6 days! Now we are back in the hospital waiting for fluid to stop draining from around his right lung.
Little Nut Nut is my 5 year old boy genius and totally freaks me out with the things he can do. What type of child learns to read at 3 years old?!? He is his Big Brothers shadow and wants to do what ever they do. He doesn't have any trouble letting everyone around here know what he thinks, has no inner voice and talks non-stop all day long. If he thinks it, he says it. He says things like "I love life" and "I am made of Awesome" and always makes me smile, even when I don't want to.
My Wing Nut, 10 years old, is my first born and is a Lego Fanatic. He talks in his sleep about "interesting number combinations" and insists that he is going to work for Lego when he grows up. From the moment he gets the current issue of Lego magazine in the mail, he anticipates the arrival of the next one. He has crazy mood swings, has recently been diagnosed with ADHD but I am not so sure that is correct. He is considered Failure to Thrive and I struggle everyday to get him to gain weight, he keeps getting taller, but not gaining any weight. I think if we can figure out why he his Failure to Thrive, his ADHD will go away.
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