Today I was thinking about Wee Nut’s first couple of days and weeks after he came home from the hospital after his first open heart surgery. Today is the anniversary of his failed cath procedure at 6 days old. Dr Limm was hoping that he could go in and put a stent in to...Keep Reading Here »
I try to keep things light around here, but I did warn a few weeks ago that you might just come across some whining and complaining this month. I am full of whine this week, unfortunately it is not nearly as fun as being full of wine. This week has been an emotionally and...Keep Reading Here »
At 6:30am, 2 years ago today, I put my 13 hour old baby down to sleep. I had been up with him off and on all night long, trying to nurse him and hanging out with him. We were in a quiet little room. I was enjoying my first night with my Little Owee...Keep Reading Here »
Really, I am too tired to actually post anything, but respiratory will be here soon for his breathing treatments and I know that there is no chance of Owain or I sleeping through that. I am just aimlessly wandering around the internet waiting for them to come and can’t really find anything to hold...Keep Reading Here »
Owee is back in the hospital. It doesn’t look as bad as last month when we were here. After running off to the doctor when he woke up from a nap with a 104.7 fever, he was having a really hard time breathing so we admitted him. One thing we know for sure is...Keep Reading Here »
Owain is a Great Look’n Kid! Most importantly, his Heart is looking Great! Owain had a peds cardiology appointment a few weeks ago. Do you remember last month when I finally posted an update about is December appointment? Here it is in this post. It took me a while to post and update because...Keep Reading Here »
Mended Little Heart National Organization is in the running to receive a $50,000 grant from the Pepsi Refresh Project. It is very easy to vote, all you have to do is visit the Pepsi Refresh Project webpage for Mended Little Hearst every day and vote. It is even easier if you have a facebook...Keep Reading Here »
I thought Owain could use a change of scenery, I know I needed it anyways! So we hunted down a portable oxygen tank, grabbed a wagon and headed out to the playroom. As soon as we got set up, respiratory therapy came in for his albuteral treatment. He fell asleep sitting up in the...Keep Reading Here »
Yesterday Owain was understandably cranky and tired. We spent the day on the couch trying to recover from the long night in the emergency room. He got up several times and slowly walked around or sat quietly on the floor playing trains with his brothers. He was still having a hard time breathing and...Keep Reading Here »
E Nut was home sick from school yesterday, he started getting a nasty cough Saturday night. Wee Nut got that same cough last night around dinner time, was wheezing, junkie, bluer than his normal and having a very hard time breathing. By the time I got every one else settled into bed and got...Keep Reading Here »
A few weeks ago, we had another storm, I finally got around to posting pictures of the kids playing in the snow from that storm just the other day in this post. It turns out there was a traveler who had spent time in Mexico with my bloggy friend Jenn. After that he went...Keep Reading Here »
Somehow I didn’t manage to get pictures of everyone with their CHD Awareness stickers on…but every one got one when they walked in the door We had many of our MLH members there as well as several nurses and doctors from Peds Cardiology. I met and talked with a few families who were in...Keep Reading Here »
Honey Nut is the Latest and Last Addition to the Family. She is our 5th Little Nut and our 1st and only Little Girl. She spends her days pretty much running after her brothers and pretending she can talk. She has no trouble being heard around here and loves her big brothers as much as they love her. Right now it is pretty much her job to just hang out and be cute.
Owain is my 3 year old, my Little Heart Kid & my Hero. He is Double Inlet, Single Ventricle with Pulmonary Atresia and Malpositioned Great Arteries. He has had 3 out of 3 Open Heart surgeries needed to “fix” his heart. The Heart is an amazing thing and I never know what to expect. He also has asthma and we are doing our best to manage that. He finally had his last surgery on June 24th 2011.
Wee Nut and Honey Nut have become a pair of serious partners in crime. The two of them together can cause more trouble than the older three. They keep me on my toes!
Owain is our Miracle Baby. You can read his Congenital Heart Defect Story from the very beginning if you click on his picture.
E Nut is 8 and wicked crazy! He is my fearless child and spent much of his life thinking if he could just jump high enough he could fly. If I let him, he would play Wii all day long, that is IF I let him. He has no trouble waking up before 6am and made me a morning person when I never thought I would be. He recently lost his first tooth and FINALLY feels like a Big Kid. E Nut and Wing Nut are the Big Kids around here and while they fight like enemies, they love like brothers.
After his Fontan on June 24th he went home after 6 days! Now we are back in the hospital waiting for fluid to stop draining from around his right lung.
Little Nut Nut is my 5 year old boy genius and totally freaks me out with the things he can do. What type of child learns to read at 3 years old?!? He is his Big Brothers shadow and wants to do what ever they do. He doesn't have any trouble letting everyone around here know what he thinks, has no inner voice and talks non-stop all day long. If he thinks it, he says it. He says things like "I love life" and "I am made of Awesome" and always makes me smile, even when I don't want to.
My Wing Nut, 10 years old, is my first born and is a Lego Fanatic. He talks in his sleep about "interesting number combinations" and insists that he is going to work for Lego when he grows up. From the moment he gets the current issue of Lego magazine in the mail, he anticipates the arrival of the next one. He has crazy mood swings, has recently been diagnosed with ADHD but I am not so sure that is correct. He is considered Failure to Thrive and I struggle everyday to get him to gain weight, he keeps getting taller, but not gaining any weight. I think if we can figure out why he his Failure to Thrive, his ADHD will go away.
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