Heart Hero

Home from The Hospital

Dr Devanagondi implanted the amplatzer device to close the fenestration, everything went great, and they were able to close up the fenestration. The team here is wonderful and I couldn’t be happier with the Heart Team at Golisano Children’s. He had an Echo, EKG, and x-rays, everything looked great and we bounced out! With...
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Remembering The Day Owain Came Home For the First Time

May 29, 2008 was one of the best days of my life. After close to 4 weeks in the hospital, after being told over and over that he could go home, only to be kept another day, we brought Owain home.   It was such a surreal feeling. I was starting to feel like...
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Thankful Thursday and Owain’s Surgeversary

Thankful Thursday at The Nut House

Happy Thursday Y’all! I spent the day with my little Owee. I am Thankful for every day I have with him. Three years ago today Dr Peeler saved his life and every moment of his life is a blessing. I am Thankful I made it through the day without breaking down and crying. I...
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He Almost Died. But He Didn’t.

Three years ago, today was Mother’s Day. The day started with a phone call to UVa to talk to Owain’s nurse to see how things went overnight, after getting off the phone with her I thought that while things were not really getting better, they weren’t getting worse. I spent some time with his...
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Thinking of Baby Owee

Today I was thinking about Wee Nut’s first couple of days and weeks after he came home from the hospital after his first open heart surgery. Today is the anniversary of his failed cath procedure at 6 days old. Dr Limm was hoping that he could go in and put a stent in to...
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The Impossible Update

I try to keep things light around here, but I did warn a few weeks ago that you might just come across some whining and complaining this month. I am full of whine this week, unfortunately it is not nearly as fun as being full of wine. This week has been an emotionally and...
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Happy 2nd Birthday Owain!! (part 2) The Day I Became a Heart Mom

How I Became a Heart Mom. CHD Awareness.

At 6:30am, 2 years ago today, I put my 13 hour old baby down to sleep. I had been up with him off and on all night long, trying to nurse him and hanging out with him. We were in a quiet little room. I was enjoying my first night with my Little Owee...
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My First Vlog, Owain is Home from the Hospital


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How Owee is Doing, Update From The Hospital

Really, I am too tired to actually post anything, but respiratory will be here soon for his breathing treatments and I know that there is no chance of Owain or I sleeping through that. I am just aimlessly wandering around the internet waiting for them to come and can’t really find anything to hold...
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Wordless Wednesday, Owee in Hospital Playroom

Wordless Wednesday, Owee in Hospital Playroom


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Back in the Hospital with Owain

Owee is back in the hospital. It doesn’t look as bad as last  month when we were here. After running off to the doctor when he woke up from a nap with a 104.7 fever, he was having a really hard time breathing so we admitted him. One thing we know for sure is...
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Great News from Peds Cardiology! Owee is a Lucky Boy and Mama Just Might Loose it

Owain is a Great Look’n Kid! Most importantly, his Heart is looking Great! Owain had a peds cardiology appointment a few weeks ago. Do you remember last month when I finally posted an update about is December appointment? Here it is in this post. It took me a while to post and update because...
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Mended Little Hearts National Organization Needs Your Votes!

Mended Little Hearts National Organization Needs Your Votes!

Mended Little Heart National Organization is in the running to receive a $50,000 grant from the Pepsi Refresh Project. It is very easy to vote, all you have to do is visit the Pepsi Refresh Project webpage for Mended Little Hearst every day and vote. It is even easier if you have a facebook...
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