Today I was thinking about Wee Nut’s first couple of days and weeks after he came home from the hospital after his first open heart surgery. Today is the anniversary of his failed cath procedure at 6 days old. Dr Limm was hoping that he could go in and put a stent in to...Keep Reading Here »
We had an amazing Mended Little Hearts meeting tonight. Our 3 leaders live in different towns and only really get to see each other once a month. It has always made planning for the group a bit difficult. We had a leaders meeting tonight and were able to sit down and talk about our...Keep Reading Here »
Mended Little Hearts of Charlottesville’s main purpose is to really focus on inpatient families at UVa. I have met very few families who live locally, most of the families we meet are from several hours away. The past couple of months we have been leaving food at the hospital and trying to figure out...Keep Reading Here »
I know how completely ineffective it is to try to host a blog hop and not get it posted until the end of the day. That doesn’t usually stop me from trying though. I just got off the phone with some great Mended Little Hearts leaders for Virgina and SW Pennsylvania. I love conference...Keep Reading Here »
Hard to believe it is Thursday already, this week is flying by! I am excited that Mr Wall Nut will be home all weekend and not have to work two jobs! I am so ready for this weekend to get here. I am SO Thankful for all of the help that we got for...Keep Reading Here »
Today is the first day of CHD Awareness Week. This is the week that we spend even more time raising awareness of congenital heart defects. There are events scheduled all over the country this week. Mended Little Hearts of Charlottesville hosted an event today at the University of Virginia. We had a fabulous time!...Keep Reading Here »
The Facts * Congenital heart defects are the most common birth defects in the United States, affecting approximately 1 in every 111 babies each year. Up to 1.3 million Americans alive today have congenital heart defects. Nearly twice as many children die from congenital heart defects in the U.S. than from all forms of...Keep Reading Here »
My house is a mess, I have only cleaned my kitchen once this week. Yesterday I feed my kids lunch on paper towels. These same kids may have gone just a little too long without a bath. The good news is that the sickness has almost completely left The Nut House! Even in the...Keep Reading Here »
Mended Little Hearts of Charlottesville invites you to our CHD Awareness Week Event with a Silent Auction Fundraiser and Bake Sale on Monday February 7th to kick off CHD Awareness Week. We will be in the Dining Conference Rooms 1-3 on the 1st floor of the University of Virginia Medical Center from 9:30am-1:30pm. These...Keep Reading Here »
Ugh! I can’t believe there is still sickness going around our house! I think we are starting to get better, Owain is definitely much better than he was last night. His fever is way down and he is done throwing himself on the ground crying from discomfort. Tonight Honey Nut was the one who...Keep Reading Here »
Happy Thursday Y’all! I hope everyone is having a great week! I have been busy this week talking to many wonderful shop owners from Etsy. If you missed my post earlier this week, Mended Little Hearts of Charlottesville is having a CHD Awareness Event and Fundraiser on February 7th. We are collecting donations for...Keep Reading Here »
If you look over at the sidebar, you can see that there is information about Mended Little Hearts of Charlottesville. I have been a member for about a year and a half and a co-coordinator for close to a year, 9-10 months or something. Time goes by way too fast for me to remember...Keep Reading Here »
Happy Thursday Y’all! I am getting nothing done this week…except for planting some apple seeds before the died…but aside from that I seem to be struggling to hold on to time. I have found that it feels better to give up than to fight to get anything done. I am Thankful for my ability...Keep Reading Here »
I was going through my memory card for my camera deleting photos and I came across theses photos of our Mended Little Hearts end of summer picnic from August. I love this park, it has a river that runs through it, a small trail that runs through the woods, a nice playground, a fishing...Keep Reading Here »
I am here, really. I have not gotten lost in the land of many children and I did find my way back from the Mended Little Hearts Convention in Minnesota with very little trouble. I only managed to miss one flight out of four, and that is not too bad for me! I had...Keep Reading Here »
Honey Nut is the Latest and Last Addition to the Family. She is our 5th Little Nut and our 1st and only Little Girl. She spends her days pretty much running after her brothers and pretending she can talk. She has no trouble being heard around here and loves her big brothers as much as they love her. Right now it is pretty much her job to just hang out and be cute.
Owain is my 3 year old, my Little Heart Kid & my Hero. He is Double Inlet, Single Ventricle with Pulmonary Atresia and Malpositioned Great Arteries. He has had 3 out of 3 Open Heart surgeries needed to “fix” his heart. The Heart is an amazing thing and I never know what to expect. He also has asthma and we are doing our best to manage that. He finally had his last surgery on June 24th 2011.
Wee Nut and Honey Nut have become a pair of serious partners in crime. The two of them together can cause more trouble than the older three. They keep me on my toes!
Owain is our Miracle Baby. You can read his Congenital Heart Defect Story from the very beginning if you click on his picture.
E Nut is 8 and wicked crazy! He is my fearless child and spent much of his life thinking if he could just jump high enough he could fly. If I let him, he would play Wii all day long, that is IF I let him. He has no trouble waking up before 6am and made me a morning person when I never thought I would be. He recently lost his first tooth and FINALLY feels like a Big Kid. E Nut and Wing Nut are the Big Kids around here and while they fight like enemies, they love like brothers.
After his Fontan on June 24th he went home after 6 days! Now we are back in the hospital waiting for fluid to stop draining from around his right lung.
Little Nut Nut is my 5 year old boy genius and totally freaks me out with the things he can do. What type of child learns to read at 3 years old?!? He is his Big Brothers shadow and wants to do what ever they do. He doesn't have any trouble letting everyone around here know what he thinks, has no inner voice and talks non-stop all day long. If he thinks it, he says it. He says things like "I love life" and "I am made of Awesome" and always makes me smile, even when I don't want to.
My Wing Nut, 10 years old, is my first born and is a Lego Fanatic. He talks in his sleep about "interesting number combinations" and insists that he is going to work for Lego when he grows up. From the moment he gets the current issue of Lego magazine in the mail, he anticipates the arrival of the next one. He has crazy mood swings, has recently been diagnosed with ADHD but I am not so sure that is correct. He is considered Failure to Thrive and I struggle everyday to get him to gain weight, he keeps getting taller, but not gaining any weight. I think if we can figure out why he his Failure to Thrive, his ADHD will go away.
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