I had to check the actual day to make sure it was in fact Wednesday. It is. Then I was gonna do a Wordless Wednesday post, but then I realized that I haven’t taken hardly any pictures of anyone in MONTHS. What I did find was hundreds of photos from our pre-surgery Hershey Park...Keep Reading Here »
Looking back at this past summer, I remember the both the fear of Owain’s upcoming surgery and the excitement of our pre-surgery vacation to Hershey Park. I could do without the fear, but I sure could use a vacation from life right now.Keep Reading Here »
In case you are wondering, and missed the news last week, we are actually home If feels so good. And a bit lonely. And very quiet! And Owain had a clinic appointment with peds cardiology yesterday and there is no fluid building up since we have been home! *doing some serious amounts of cartwheels*Keep Reading Here »
We are fully immersed in the up and down ride that is the recovery of the Fontan. We have been back in the hospital for 1 week, the days are blurring into one another and time is only really important when it comes to giving my Little Owee his meds. I think it was...Keep Reading Here »
Owain is sitting here at UVa Children’s doing puzzles after actually eating a good lunch. I am guessing the nurse will come in to check on us any minute now. I think he has some meds due soon & with any luck they will come in before he gets sleepy and takes a nap....Keep Reading Here »
I can’t believe how much time has gone by since his surgery, and since we have been home! Owain is doing great, we were sent home only 6 days post fontan. Unbelieveable! His brothers planned a surprise party for him, decorated the living room and gathered all of his favorite things. Everyone was full...Keep Reading Here »
I have been taking photos of my Little Wee Nut for days. While we were waiting in the pre-op room last Friday before his Fontan, I got this photo of Owee with Daddy. This was after he had his dose of versed and was feeling a little silly.Keep Reading Here »
While I have been sucked into hospital time, I have lost hours and track of what day it is, but the good news is that Owain is doing great. Friday was such a long, long day, I thought it would never end. I am still recovering from the stress of waiting and worrying. Not...Keep Reading Here »
We went in to UVa this morning for Owee’s pre-op appointment. Everything looks great for surgery tomorrow. It was a long day and we are tired! We decided to come back and spend some extra time with the other 4 kids for a bit this evening and then we are heading back into Charlottesville...Keep Reading Here »
I just realized that today is Friday. That means that we are only 1 week a way from Owain’s surgery. Today though, we had a great time at the park, such a great time that I didn’t even think about what day it was once. I took hundreds of photos, way too many to...Keep Reading Here »
We haven’t even made it to the park yet and we are having a great time already! We are enjoying time together, time in the pool and time forgetting about everything that has been weighing so heavily on us. When we checked into our room yesterday there was a little package waiting for us....Keep Reading Here »
After months of planning, we are just hours away from leaving for our Pre-Surgery vacation! We were in the middle of planning our trip when I mentioned it here a few months ago. We had what we thought was a nice trip planned, and what we really wanted to to was to spend time...Keep Reading Here »
I heard this song today and thought of Owain.Keep Reading Here »
There is an awesome story behind our pre-surgery vacation that we are taking next week that has been almost completely donated. Tonight I will just share where we are going! Squeeeee! We are leaving in 6 More Days!! The kids can hardly take the wait. And neither can I!Keep Reading Here »
A vlog in which I say “for realies, yo” for realz.Keep Reading Here »
Honey Nut is the Latest and Last Addition to the Family. She is our 5th Little Nut and our 1st and only Little Girl. She spends her days pretty much running after her brothers and pretending she can talk. She has no trouble being heard around here and loves her big brothers as much as they love her. Right now it is pretty much her job to just hang out and be cute.
Owain is my 3 year old, my Little Heart Kid & my Hero. He is Double Inlet, Single Ventricle with Pulmonary Atresia and Malpositioned Great Arteries. He has had 3 out of 3 Open Heart surgeries needed to “fix” his heart. The Heart is an amazing thing and I never know what to expect. He also has asthma and we are doing our best to manage that. He finally had his last surgery on June 24th 2011.
Wee Nut and Honey Nut have become a pair of serious partners in crime. The two of them together can cause more trouble than the older three. They keep me on my toes!
Owain is our Miracle Baby. You can read his Congenital Heart Defect Story from the very beginning if you click on his picture.
E Nut is 8 and wicked crazy! He is my fearless child and spent much of his life thinking if he could just jump high enough he could fly. If I let him, he would play Wii all day long, that is IF I let him. He has no trouble waking up before 6am and made me a morning person when I never thought I would be. He recently lost his first tooth and FINALLY feels like a Big Kid. E Nut and Wing Nut are the Big Kids around here and while they fight like enemies, they love like brothers.
After his Fontan on June 24th he went home after 6 days! Now we are back in the hospital waiting for fluid to stop draining from around his right lung.
Little Nut Nut is my 5 year old boy genius and totally freaks me out with the things he can do. What type of child learns to read at 3 years old?!? He is his Big Brothers shadow and wants to do what ever they do. He doesn't have any trouble letting everyone around here know what he thinks, has no inner voice and talks non-stop all day long. If he thinks it, he says it. He says things like "I love life" and "I am made of Awesome" and always makes me smile, even when I don't want to.
My Wing Nut, 10 years old, is my first born and is a Lego Fanatic. He talks in his sleep about "interesting number combinations" and insists that he is going to work for Lego when he grows up. From the moment he gets the current issue of Lego magazine in the mail, he anticipates the arrival of the next one. He has crazy mood swings, has recently been diagnosed with ADHD but I am not so sure that is correct. He is considered Failure to Thrive and I struggle everyday to get him to gain weight, he keeps getting taller, but not gaining any weight. I think if we can figure out why he his Failure to Thrive, his ADHD will go away.
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