It’s a Cath Lab day for Owain! He got the fenestration closed from his Fontan procedure when he was 3. This is his first procedure at Golisano Children’s. We miss the team at UVa Medical Center, but have tons of faith in his new hospital and the team here, they have been great to...
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I had to check the actual day to make sure it was in fact Wednesday. It is. Then I was gonna do a Wordless Wednesday post, but then I realized that I haven’t taken hardly any pictures of anyone in MONTHS. What I did find was hundreds of photos from our pre-surgery Hershey Park...
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Looking back at this past summer, I remember the both the fear of Owain’s upcoming surgery and the excitement of our pre-surgery vacation to Hershey Park. I could do without the fear, but I sure could use a vacation from life right now.
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Time. Life. Money. No matter how hard we try, it all just Slips Away. You know the saying “If you don’t have anything nice to say, don’t say anything at all”? I guess that is me. Well not entirely.
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In case you are wondering, and missed the news last week, we are actually home 🙂 If feels so good. And a bit lonely. And very quiet! And Owain had a clinic appointment with peds cardiology yesterday and there is no fluid building up since we have been home! *doing some serious amounts of...
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We are fully immersed in the up and down ride that is the recovery of the Fontan. We have been back in the hospital for 1 week, the days are blurring into one another and time is only really important when it comes to giving my Little Owee his meds. I think it was...
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Owain is sitting here at UVa Children’s doing puzzles after actually eating a good lunch. I am guessing the nurse will come in to check on us any minute now. I think he has some meds due soon & with any luck they will come in before he gets sleepy and takes a nap....
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I can’t believe how much time has gone by since his surgery, and since we have been home! Owain is doing great, we were sent home only 6 days post fontan. Unbelieveable! His brothers planned a surprise party for him, decorated the living room and gathered all of his favorite things. Everyone was full...
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While I have been sucked into hospital time, I have lost hours and track of what day it is, but the good news is that Owain is doing great. Friday was such a long, long day, I thought it would never end. I am still recovering from the stress of waiting and worrying. Not...
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We went in to UVa this morning for Owee’s pre-op appointment. Everything looks great for surgery tomorrow. It was a long day and we are tired! We decided to come back and spend some extra time with the other 4 kids for a bit this evening and then we are heading back into Charlottesville...
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I just realized that today is Friday. That means that we are only 1 week a way from Owain’s surgery. Today though, we had a great time at the park, such a great time that I didn’t even think about what day it was once. I took hundreds of photos, way too many to...
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We haven’t even made it to the park yet and we are having a great time already! We are enjoying time together, time in the pool and time forgetting about everything that has been weighing so heavily on us. When we checked into our room yesterday there was a little package waiting for us....
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After months of planning, we are just hours away from leaving for our Pre-Surgery vacation! We were in the middle of planning our trip when I mentioned it here a few months ago. We had what we thought was a nice trip planned, and what we really wanted to do was to spend time together,...
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