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I am Not as Strong as I appear. I enjoy weakness from time to time. We are a homeschooling, special needs family of 6. My 4th son has a Congenital Heart defect, and my oldest has ADHD. I am a survivor of Adultery and mental abuse. I learned that you never really know someone until you are strong enough to stand up and walk away. I love and protect my children, with everything I have. My life might seem unbelievable, but I couldn't make this shit up if I tried! Stick around & let's get to know each other.
I had to check the actual day to make sure it was in fact Wednesday. It is. Then I was gonna do a Wordless Wednesday post, but then I realized that I haven’t taken hardly any pictures of anyone in MONTHS. What I did find was hundreds of photos from our pre-surgery Hershey Park...
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Looking back at this past summer, I remember the both the fear of Owain’s upcoming surgery and the excitement of our pre-surgery vacation to Hershey Park. I could do without the fear, but I sure could use a vacation from life right now.
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Time. Life. Money. No matter how hard we try, it all just Slips Away. You know the saying “If you don’t have anything nice to say, don’t say anything at all”? I guess that is me. Well not entirely.
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In case you are wondering, and missed the news last week, we are actually home If feels so good. And a bit lonely. And very quiet! And Owain had a clinic appointment with peds cardiology yesterday and there is no fluid building up since we have been home! *doing some serious amounts of cartwheels*
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We are fully immersed in the up and down ride that is the recovery of the Fontan. We have been back in the hospital for 1 week, the days are blurring into one another and time is only really important when it comes to giving my Little Owee his meds. I think it was...
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Owain is sitting here at UVa Children’s doing puzzles after actually eating a good lunch. I am guessing the nurse will come in to check on us any minute now. I think he has some meds due soon & with any luck they will come in before he gets sleepy and takes a nap....
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I can’t believe how much time has gone by since his surgery, and since we have been home! Owain is doing great, we were sent home only 6 days post fontan. Unbelieveable! His brothers planned a surprise party for him, decorated the living room and gathered all of his favorite things. Everyone was full...
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I have been taking photos of my Little Wee Nut for days. While we were waiting in the pre-op room last Friday before his Fontan, I got this photo of Owee with Daddy. This was after he had his dose of versed and was feeling a little silly.
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While I have been sucked into hospital time, I have lost hours and track of what day it is, but the good news is that Owain is doing great. Friday was such a long, long day, I thought it would never end. I am still recovering from the stress of waiting and worrying. Not...
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We went in to UVa this morning for Owee’s pre-op appointment. Everything looks great for surgery tomorrow. It was a long day and we are tired! We decided to come back and spend some extra time with the other 4 kids for a bit this evening and then we are heading back into Charlottesville...
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I just realized that today is Friday. That means that we are only 1 week a way from Owain’s surgery. Today though, we had a great time at the park, such a great time that I didn’t even think about what day it was once. I took hundreds of photos, way too many to...
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We haven’t even made it to the park yet and we are having a great time already! We are enjoying time together, time in the pool and time forgetting about everything that has been weighing so heavily on us. When we checked into our room yesterday there was a little package waiting for us....
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After months of planning, we are just hours away from leaving for our Pre-Surgery vacation! We were in the middle of planning our trip when I mentioned it here a few months ago. We had what we thought was a nice trip planned, and what we really wanted to to was to spend time...
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I heard this song today and thought of Owain.
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There is an awesome story behind our pre-surgery vacation that we are taking next week that has been almost completely donated. Tonight I will just share where we are going! Squeeeee! We are leaving in 6 More Days!! The kids can hardly take the wait. And neither can I!
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A vlog in which I say “for realies, yo” for realz.
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It has been a long day. I didn’t sleep much, or well last night and not that my day is over I don’t have much energy left. Everything went great. We ended up going in much later than scheduled, which made for a long morning for Owain. We were scheduled for 9:30 and it...
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We had an amazing Mended Little Hearts meeting tonight. Our 3 leaders live in different towns and only really get to see each other once a month. It has always made planning for the group a bit difficult. We had a leaders meeting tonight and were able to sit down and talk about our...
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Happy Thursday Y’all! So I did something really stupid yesterday. I was in the middle of a phone call with the phone company, the kids kept coming in and asking me a million questions, even though the door was closed and I told them I was on the phone, leave me alone for a...
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It is a very happy and blessed Thursday Y’all! I am so very Thankful for the overwhelming support and prayers sent to Owain this past week! I can’t even begin to tell you all how much it means to us! We went to UVa this afternoon for a follow up with peds cardiology. It...
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In Owain's 4 short years, he has had 3 Open Heart Surgeries, and 1 surgery to place Pacemaker wires on both his upper and lower heart. He is looking at a lifetime of surgeries to replace the Pacemaker batteries. Hopefully that is all he will need, but we live our lives Praying for the Best while being Prepared for the Worst.
