Login to Comment and Follow
I am Not as Strong as I appear. I enjoy weakness from time to time. We are a homeschooling, special needs family of 6. My 4th son has a Congenital Heart defect, and my oldest has ADHD. I am a survivor of Adultery and mental abuse. I learned that you never really know someone until you are strong enough to stand up and walk away. I love and protect my children, with everything I have. My life might seem unbelievable, but I couldn't make this shit up if I tried! Stick around & let's get to know each other.
I had to check the actual day to make sure it was in fact Wednesday. It is. Then I was gonna do a Wordless Wednesday post, but then I realized that I haven’t taken hardly any pictures of anyone in MONTHS. What I did find was hundreds of photos from our pre-surgery Hershey Park...
Keep Reading »
Looking back at this past summer, I remember the both the fear of Owain’s upcoming surgery and the excitement of our pre-surgery vacation to Hershey Park. I could do without the fear, but I sure could use a vacation from life right now.
Keep Reading »
Time. Life. Money. No matter how hard we try, it all just Slips Away. You know the saying “If you don’t have anything nice to say, don’t say anything at all”? I guess that is me. Well not entirely.
Keep Reading »
In case you are wondering, and missed the news last week, we are actually home 🙂 If feels so good. And a bit lonely. And very quiet! And Owain had a clinic appointment with peds cardiology yesterday and there is no fluid building up since we have been home! *doing some serious amounts of...
Keep Reading »
We are fully immersed in the up and down ride that is the recovery of the Fontan. We have been back in the hospital for 1 week, the days are blurring into one another and time is only really important when it comes to giving my Little Owee his meds. I think it was...
Keep Reading »
Owain is sitting here at UVa Children’s doing puzzles after actually eating a good lunch. I am guessing the nurse will come in to check on us any minute now. I think he has some meds due soon & with any luck they will come in before he gets sleepy and takes a nap....
Keep Reading »
I can’t believe how much time has gone by since his surgery, and since we have been home! Owain is doing great, we were sent home only 6 days post fontan. Unbelieveable! His brothers planned a surprise party for him, decorated the living room and gathered all of his favorite things. Everyone was full...
Keep Reading »
I have been taking photos of my Little Wee Nut for days. While we were waiting in the pre-op room last Friday before his Fontan, I got this photo of Owee with Daddy. This was after he had his dose of versed and was feeling a little silly.
Keep Reading »
While I have been sucked into hospital time, I have lost hours and track of what day it is, but the good news is that Owain is doing great. Friday was such a long, long day, I thought it would never end. I am still recovering from the stress of waiting and worrying. Not...
Keep Reading »
We went in to UVa this morning for Owee’s pre-op appointment. Everything looks great for surgery tomorrow. It was a long day and we are tired! We decided to come back and spend some extra time with the other 4 kids for a bit this evening and then we are heading back into Charlottesville...
Keep Reading »
I just realized that today is Friday. That means that we are only 1 week a way from Owain’s surgery. Today though, we had a great time at the park, such a great time that I didn’t even think about what day it was once. I took hundreds of photos, way too many to...
Keep Reading »
We haven’t even made it to the park yet and we are having a great time already! We are enjoying time together, time in the pool and time forgetting about everything that has been weighing so heavily on us. When we checked into our room yesterday there was a little package waiting for us....
Keep Reading »
After months of planning, we are just hours away from leaving for our Pre-Surgery vacation! We were in the middle of planning our trip when I mentioned it here a few months ago. We had what we thought was a nice trip planned, and what we really wanted to to was to spend time...
Keep Reading »
In Owain's 4 short years, he has had 3 Open Heart Surgeries, and 1 surgery to place Pacemaker wires on both his upper and lower heart. He is looking at a lifetime of surgeries to replace the Pacemaker batteries. Hopefully that is all he will need, but we live our lives Praying for the Best while being Prepared for the Worst.
