The Fontan

Hershey Park, Here We Come!

After months of planning, we are just hours away from leaving for our Pre-Surgery vacation! We were in the middle of planning our trip when I mentioned it here a few months ago. We had what we thought was a nice trip planned, and what we really wanted to to was to spend time...
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Dear Owain, I’ll Stand By You

I heard this song today and thought of Owain.
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6 More Days Until Our Vacation!!!

There is an awesome story behind our pre-surgery vacation that we are taking next week that has been almost completely donated. Tonight I will just share where we are going! Squeeeee! We are leaving in 6 More Days!! The kids can hardly take the wait. And neither can I!
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Vlogging with My Little Owee

A vlog in which I say “for realies, yo” for realz.
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Quick Update on Owain’s Heart Cath with Decisions to be Made

It has been a long day. I didn’t sleep much, or well last night and not that my day is over I don’t have much energy left. Everything went great. We ended up going in much later than scheduled, which made for a long morning for Owain. We were scheduled for 9:30 and it...
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Random Thoughts of a CHD Mom

We had an amazing Mended Little Hearts meeting tonight. Our 3 leaders live in different towns and only really get to see each other once a month. It has always made planning for the group a bit difficult. We had a leaders meeting tonight and were able to sit down and talk about our...
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Thankful Thursday

Thankful Thursday at The Nut House

Happy Thursday Y’all! I got a call from UVa today. They called to schedule Owain’s Cath procedure in May, his Pre-op appointment June 23rd and Surgery date for the Fontan on June 24th. Owain’s surgery is June 24th. Sigh. Cry. Vomit. Faint. Fall apart. I am Thankful for all of the support and encouragement...
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Thankful Thursday

Thankful Thursday at The Nut House

It is a very happy and blessed Thursday Y’all! I am so very Thankful for the overwhelming support and prayers sent to Owain this past week! I can’t even begin to tell you all how much it means to us! We went to UVa this afternoon for a follow up with peds cardiology. It...
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