Congenital Heart Defects

Super Quick Surgery Update!

I can’t believe how much time has gone by since his surgery, and since we have been home! Owain is doing great, we were sent home only 6 days post fontan. Unbelieveable! His brothers planned a surprise party for him, decorated the living room and gathered all of his favorite things. Everyone was full...
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Owain Pre-Op

I have been taking photos of my Little Wee Nut for days. While we were waiting in the pre-op room last Friday before his Fontan, I got this photo of Owee with Daddy. This was after he had his dose of versed and was feeling a little silly.
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My Little {hero} Owee

While I have been sucked into hospital time, I have lost hours and track of what day it is, but the good news is that Owain is doing great. Friday was such a long, long day, I thought it would never end. I am still recovering from the stress of waiting and worrying. Not...
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Final Thoughts Before Owain’s Surgery Tomorrow

We went in to UVa this morning for Owee’s pre-op appointment. Everything looks great for surgery tomorrow. It was a long day and we are tired! We decided to come back and spend some extra time with the other 4 kids for a bit this evening and then we are heading back into Charlottesville...
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It is Hard to Believe…

I just realized that today is Friday. That means that we are only 1 week a way from Owain’s surgery. Today though, we had a great time at the park, such a great time that I didn’t even think about what day it was once. I took hundreds of photos, way too many to...
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Welcome to Hershey!

We haven’t even made it to the park yet and we are having a great time already! We are enjoying time together, time in the pool  and time forgetting about everything that has been weighing so heavily on us. When we checked into our room yesterday there was a little package waiting for us....
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Hershey Park, Here We Come!

After months of planning, we are just hours away from leaving for our Pre-Surgery vacation! We were in the middle of planning our trip when I mentioned it here a few months ago. We had what we thought was a nice trip planned, and what we really wanted to to was to spend time...
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Dear Owain, I’ll Stand By You

I heard this song today and thought of Owain.
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6 More Days Until Our Vacation!!!

There is an awesome story behind our pre-surgery vacation that we are taking next week that has been almost completely donated. Tonight I will just share where we are going! Squeeeee! We are leaving in 6 More Days!! The kids can hardly take the wait. And neither can I!
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Thankful Thursday

Thankful Thursday at The Nut House

Happy Thursday Y’all! Yikes, I am Thankful this day is over! The day itself was a good one, a wicked busy one though and I am exhausted from it! We came so close to finishing up E Nut’s homeschool for the year, but he fizzled out at the end of the year end review...
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Pulse Ox Virginia: Mandating Pulse Ox Screening

After seeing that New Jersey became the First State in the Nation to Mandate Pulse Ox screening for ALL Newborns I got to chatting on facebook with several others amazing CHD advocates in Virginia. I have been talking with a few others about working on a bill for the past couple of months, but...
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Vlogging with My Little Owee

A vlog in which I say “for realies, yo” for realz.
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Remembering The Day Owain Came Home For the First Time

May 29, 2008 was one of the best days of my life. After close to 4 weeks in the hospital, after being told over and over that he could go home, only to be kept another day, we brought Owain home.   It was such a surreal feeling. I was starting to feel like...
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