Congenital Heart Defects

Random Thoughts from a Tired Mama

I have looked back over some of my posts from the past few days and they seem to be a bit rambly (if that is a word) and may or may not make any sense. Somehow I am am OK with that, lol. So in keeping up with tired rambling I need to share...
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Photos from Owain’s Heart Cath

I was too tired to unpack my camera and upload the photos last night, but I manged to get to it today. I wish I would have gotten a few videos as well, he was such a funny little boy. It is interesting how easily he settles in soaks up everything around him.  ...
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Quick Update on Owain’s Heart Cath with Decisions to be Made

It has been a long day. I didn’t sleep much, or well last night and not that my day is over I don’t have much energy left. Everything went great. We ended up going in much later than scheduled, which made for a long morning for Owain. We were scheduled for 9:30 and it...
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Owain’s Heart Cath Monday May 16

I like to think that I have been doing a pretty good job holding myself together. Between his birthday on the 3rd and thinking about his first surgery 3 years ago, and his up coming Heart Cath tomorrow and surgery next month, I have had plenty to freak out over. I have really tried...
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Thankful Thursday and Owain’s Surgeversary

Thankful Thursday at The Nut House

Happy Thursday Y’all! I spent the day with my little Owee. I am Thankful for every day I have with him. Three years ago today Dr Peeler saved his life and every moment of his life is a blessing. I am Thankful I made it through the day without breaking down and crying. I...
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He Almost Died. But He Didn’t.

Three years ago, today was Mother’s Day. The day started with a phone call to UVa to talk to Owain’s nurse to see how things went overnight, after getting off the phone with her I thought that while things were not really getting better, they weren’t getting worse. I spent some time with his...
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Thinking of Baby Owee

Today I was thinking about Wee Nut’s first couple of days and weeks after he came home from the hospital after his first open heart surgery. Today is the anniversary of his failed cath procedure at 6 days old. Dr Limm was hoping that he could go in and put a stent in to...
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Happy 3rd Birthday Owain!

I think when your birthday falls so that your age and the date match, it is supposed to be a special one. Owain is 3 on the 3rd, but every birthday for him is a special one. It will always be a day that I will remember as the day before I learned about...
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Dr Owain Checks His Brothers Heart

Dr Owain Checks His Brothers Heart

I can’t believe Owain hasn’t had a Dr kit until now! Grammy Nut found one the other day and just had to get it for him. He has been playing with it and giving everyone a check-up. We might have to start taking some of his Dr tools to appointments with us!
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Random Thoughts of a CHD Mom

We had an amazing Mended Little Hearts meeting tonight. Our 3 leaders live in different towns and only really get to see each other once a month. It has always made planning for the group a bit difficult. We had a leaders meeting tonight and were able to sit down and talk about our...
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Mended Little Hearts Making Food Bags for Heart Families

Mended Little Hearts of Charlottesville’s main purpose is to really focus on inpatient families at UVa. I have met very few families who live locally, most of the families we meet are from several hours away. The past couple of months we have been leaving food at the hospital and trying to figure out...
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10 Things Tuesday

I know how completely ineffective it is to try to host a blog hop and not get it posted until the end of the day. That doesn’t usually stop me from trying though. I just got off the phone with some great Mended Little Hearts leaders for Virgina and SW Pennsylvania. I love conference...
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Thankful Thursday

Thankful Thursday at The Nut House

Happy Thursday Y’all! I got a call from UVa today. They called to schedule Owain’s Cath procedure in May, his Pre-op appointment June 23rd and Surgery date for the Fontan on June 24th. Owain’s surgery is June 24th. Sigh. Cry. Vomit. Faint. Fall apart. I am Thankful for all of the support and encouragement...
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