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I am Not as Strong as I appear. I enjoy weakness from time to time. We are a homeschooling, special needs family of 7. My 4th son has a Congenital Heart defect, and my oldest has ADHD. We like to find old things and make them new, so we bought a house that was in desperate need of repair, then we doubled the sized of it. This project is well over 9 years long, with still plenty to do, and has pushed my fear of heights over the limit too many times. The best part is I am still alive to talk about it! Some of my passions are my children, and making Jewelry. When life gets stressful (often times stress induced by children!) opening up my bins of beads to create something beautiful that will soon bring joy to someone else is all I need. That and chocolate. I am just hanging on by the seat of my pants. Stick around & let's get to know each other.
Really, I am too tired to actually post anything, but respiratory will be here soon for his breathing treatments and I know that there is no chance of Owain or I sleeping through that. I am just aimlessly wandering around the internet waiting for them to come and can’t really find anything to hold...
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Owee is back in the hospital. It doesn’t look as bad as last month when we were here. After running off to the doctor when he woke up from a nap with a 104.7 fever, he was having a really hard time breathing so we admitted him. One thing we know for sure is...
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Owain is a Great Look’n Kid! Most importantly, his Heart is looking Great! Owain had a peds cardiology appointment a few weeks ago. Do you remember last month when I finally posted an update about is December appointment? Here it is in this post. It took me a while to post and update because...
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Mended Little Heart National Organization is in the running to receive a $50,000 grant from the Pepsi Refresh Project. It is very easy to vote, all you have to do is visit the Pepsi Refresh Project webpage for Mended Little Hearst every day and vote. It is even easier if you have a facebook...
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I was strong for my son when I had to be, now we are home, the house is quiet, Owain is sleeping and when I sat down to share this I started to cry. I was so scared when he wasn’t getting better, when he wouldn’t even talk to me, I thought “what if...
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I thought Owain could use a change of scenery, I know I needed it anyways! So we hunted down a portable oxygen tank, grabbed a wagon and headed out to the playroom. As soon as we got set up, respiratory therapy came in for his albuteral treatment. He fell asleep sitting up in the...
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Yesterday Owain was understandably cranky and tired. We spent the day on the couch trying to recover from the long night in the emergency room. He got up several times and slowly walked around or sat quietly on the floor playing trains with his brothers. He was still having a hard time breathing and...
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E Nut was home sick from school yesterday, he started getting a nasty cough Saturday night. Wee Nut got that same cough last night around dinner time, was wheezing, junkie, bluer than his normal and having a very hard time breathing. By the time I got every one else settled into bed and got...
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Thank you to every one who entered. I am sorry that blogger was giving so many of you a hard time, and as far as I know there are still commenting issues with blogger. There very well may be a big change here at The Nut House blog…but that is for another day. The...
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This came in the mail the other day, it came so quick!
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A few weeks ago, we had another storm, I finally got around to posting pictures of the kids playing in the snow from that storm just the other day in this post. It turns out there was a traveler who had spent time in Mexico with my bloggy friend Jenn. After that he went...
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Happy Thursday! The week is almost over and I am feeling good, how about you? This week has been a very productive one at The Nut House. I have managed to find a good amount of motivation to get things done around here. So far I am having a very energized week with very...
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It took awhile, and I requested a proclamation and got a Certificate of Recognition, but I don’t think that really matters at this point. I was getting nowhere for a while, but Grandma Nut remembered she had someone on the inside who might be able to get things moving along. In defense of Governor...
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Somehow I didn’t manage to get pictures of everyone with their CHD Awareness stickers on…but every one got one when they walked in the door We had many of our MLH members there as well as several nurses and doctors from Peds Cardiology. I met and talked with a few families who were in...
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Update 2/13/2010 …it looks like there are still issues with comments on my blog, as far as I know it is a blogger issue and is causing trouble on many other blogs as well. I have been contacted by several people trying to enter this giveaway who are experiencing commenting glitches. Unfortunately, there is...
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Last night I was talking to Will about this, and realized that the General Assembly is meeting next week. For some reason, I was thinking the were meeting with the new Governor after the inauguration in a few weeks. Honestly, I never thought I would think about when the General Assembly would meet and...
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I actually got the main body of this letter from the the Congenital Heart Information Network (CHIN) and added my own personal touch. If you would like to send a request of a Proclamation to your governor, CHIN has a basic letter that you can use along with a rough draft of a proclamation...
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We are all saying it “New Year Eve already? Where did the year go?!?” I am right there with you, this year has gone so fast. So many things have happened here at the Nut House, and while we have had some tough times, the good times are always here to hold us up...
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Baby Cora passed away this past week after only a few beautiful days with her family. She scored high on her Apgars and looked to be perfectly healthy. She spend her lasts moments breastfeeding with her loving mother before passing suddenly and unexpectedly from and undiagnosed Heart Defect. Kristine had a normal and healthy...
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In Owain's 4 short years, he has had 3 Open Heart Surgeries, and 1 surgery to place Pacemaker wires on both his upper and lower heart. He is looking at a lifetime of surgeries to replace the Pacemaker batteries. Hopefully that is all he will need, but we live our lives Praying for the Best while being Prepared for the Worst.
