Looking back at this past summer, I remember the both the fear of Owain’s upcoming surgery and the excitement of our pre-surgery vacation to Hershey Park. I could do without the fear, but I sure could use a vacation from life right now.Keep Reading Here »
Happy Thursday Y’all! Yikes, I am Thankful this day is over! The day itself was a good one, a wicked busy one though and I am exhausted from it! We came so close to finishing up E Nut’s homeschool for the year, but he fizzled out at the end of the year end review...Keep Reading Here »
I had hopes and plans for this week. With 5 sick kids, none of it is getting done. As frustrating as it is, I am OK with it. The 3 big kids have had high fevers since last night and when I thought Owee’s had gone down, it came back. Honey Nut had the...Keep Reading Here »
After our awesome 1 hour family Wii Fit workout yesterday, Mr Wall Nut and I decided that we were going to start getting up at 5am to workout. We have been talking about it for months and were so close when daylight savings time messed up my schedule. Yes. I am still bitter, and...Keep Reading Here »
Every once in awhile, the kids managed to pull something out of their little brains that not only makes me smile and giggle, but also pushes back both dinner time and bed time. It’s like they know if they do something special for me that they can get away with anything. Kinda like the...Keep Reading Here »
Happy Thursday Y’all! My kids were in rare form today. It was the type of day that I could not have predicted if I were a psychic. My morning started while Wee Nut played quietly in his room, the big kids were in the class room making paper bag puppets and Little Nut Nut...Keep Reading Here »
Mr Wall Nut took the 2 big kids on a Cub Scout camp out this weekend. E Nut got me up extra early today running around with excitement. Wing Nut enjoys his mornings much more like I do, late and lazy. Somehow we get woken up way to early by the early risers. I...Keep Reading Here »
Warm days. Cool Nights. Random thunderstorms. The muddy smell of a constantly damp Earth. I love Spring! The past month has given us several warm days with open windows, followed my even more days of cold days, bundled up in coats. This week is not going to be any different. Today was around 70...Keep Reading Here »
I just downloaded a bunch of photos off of my phone. Most of these I didn’t even remember taking. I love fun surprises Keep Reading Here »
We finally got the new Just Dance 2 last weekend. We’ve been having a great time playing Wii and the kids have been playing Wii Fit with me, but most of the active games that we have are 1 player. With Wii Fit, we have to take turns playing. I love the Mario Cart...Keep Reading Here »
Your prayers have been heard! Owain was having a difficult time yesterday, but everything started going really bad after his 3pm Xopenex treatement. Instead of helping his breathing, it made it worse. So we stopped giving it to him. He has had Xopenex before, so I don’t know why he had such a bad...Keep Reading Here »
And I am getting frustrated. Last night the ER doc thought he had an ear infection, but the doctor on call came in and said no ear infection. His pediatrician came in this morning and said that at least one ear was infected and the other one was red and swollen. That explains the...Keep Reading Here »
Sitting in the ER, again, wishing we weren’t here. The nurses are getting to know us. I recognize them, they recognize us. One of Owain’s ER nurses from last month told me she thinks about him often and has added him to her prayer list. So.Darn.Sweet. One of his nurses tonight was up working...Keep Reading Here »
We are so happy that we got to bring Owee home from the hospital today! It seems so much longer than one day, and I think it is going to take me a lot longer than one day to catch up on my lack of sleep. But the important thing is that we are...Keep Reading Here »
Owain has taken my computer hostage for pretty much the entire time we have been in the hospital. Earlier I got a ransom note that said unless you want me to scream all day, you will give me your computer and make sure that it is tuned into Nick Jr at all times. My...Keep Reading Here »
Honey Nut is the Latest and Last Addition to the Family. She is our 5th Little Nut and our 1st and only Little Girl. She spends her days pretty much running after her brothers and pretending she can talk. She has no trouble being heard around here and loves her big brothers as much as they love her. Right now it is pretty much her job to just hang out and be cute.
Owain is my 3 year old, my Little Heart Kid & my Hero. He is Double Inlet, Single Ventricle with Pulmonary Atresia and Malpositioned Great Arteries. He has had 3 out of 3 Open Heart surgeries needed to “fix” his heart. The Heart is an amazing thing and I never know what to expect. He also has asthma and we are doing our best to manage that. He finally had his last surgery on June 24th 2011.
Wee Nut and Honey Nut have become a pair of serious partners in crime. The two of them together can cause more trouble than the older three. They keep me on my toes!
Owain is our Miracle Baby. You can read his Congenital Heart Defect Story from the very beginning if you click on his picture.
E Nut is 8 and wicked crazy! He is my fearless child and spent much of his life thinking if he could just jump high enough he could fly. If I let him, he would play Wii all day long, that is IF I let him. He has no trouble waking up before 6am and made me a morning person when I never thought I would be. He recently lost his first tooth and FINALLY feels like a Big Kid. E Nut and Wing Nut are the Big Kids around here and while they fight like enemies, they love like brothers.
After his Fontan on June 24th he went home after 6 days! Now we are back in the hospital waiting for fluid to stop draining from around his right lung.
Little Nut Nut is my 5 year old boy genius and totally freaks me out with the things he can do. What type of child learns to read at 3 years old?!? He is his Big Brothers shadow and wants to do what ever they do. He doesn't have any trouble letting everyone around here know what he thinks, has no inner voice and talks non-stop all day long. If he thinks it, he says it. He says things like "I love life" and "I am made of Awesome" and always makes me smile, even when I don't want to.
My Wing Nut, 10 years old, is my first born and is a Lego Fanatic. He talks in his sleep about "interesting number combinations" and insists that he is going to work for Lego when he grows up. From the moment he gets the current issue of Lego magazine in the mail, he anticipates the arrival of the next one. He has crazy mood swings, has recently been diagnosed with ADHD but I am not so sure that is correct. He is considered Failure to Thrive and I struggle everyday to get him to gain weight, he keeps getting taller, but not gaining any weight. I think if we can figure out why he his Failure to Thrive, his ADHD will go away.
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