Sitting in the ER, again, wishing we weren’t here. The nurses are getting to know us. I recognize them, they recognize us. One of Owain’s ER nurses from last month told me she thinks about him often and has added him to her prayer list. So.Darn.Sweet. One of his nurses tonight was up working...Keep Reading Here »
Emergency Room
Owain’s Hospital Update
Owain has taken my computer hostage for pretty much the entire time we have been in the hospital. Earlier I got a ransom note that said unless you want me to scream all day, you will give me your computer and make sure that it is tuned into Nick Jr at all times. My...Keep Reading Here »
Back to the ER and Now Admitted to the Pediatric Floor
Yesterday Owain was understandably cranky and tired. We spent the day on the couch trying to recover from the long night in the emergency room. He got up several times and slowly walked around or sat quietly on the floor playing trains with his brothers. He was still having a hard time breathing and...Keep Reading Here »
Spent the Night in the ER with Owee
E Nut was home sick from school yesterday, he started getting a nasty cough Saturday night. Wee Nut got that same cough last night around dinner time, was wheezing, junkie, bluer than his normal and having a very hard time breathing. By the time I got every one else settled into bed and got...Keep Reading Here »
Honey Nut
Honey Nut is the Latest and Last Addition to the Family. She is our 5th Little Nut and our 1st and only Little Girl. She spends her days pretty much running after her brothers and pretending she can talk. She has no trouble being heard around here and loves her big brothers as much as they love her. Right now it is pretty much her job to just hang out and be cute.
Wee Nut
Owain is my 3 year old, my Little Heart Kid & my Hero. He is Double Inlet, Single Ventricle with Pulmonary Atresia and Malpositioned Great Arteries. He has had 3 out of 3 Open Heart surgeries needed to “fix” his heart. The Heart is an amazing thing and I never know what to expect. He also has asthma and we are doing our best to manage that. He finally had his last surgery on June 24th 2011.
Wee Nut and Honey Nut have become a pair of serious partners in crime. The two of them together can cause more trouble than the older three. They keep me on my toes!
Owain is our Miracle Baby. You can read his Congenital Heart Defect Story from the very beginning if you click on his picture.
E Nut
E Nut is 8 and wicked crazy! He is my fearless child and spent much of his life thinking if he could just jump high enough he could fly. If I let him, he would play Wii all day long, that is IF I let him. He has no trouble waking up before 6am and made me a morning person when I never thought I would be. He recently lost his first tooth and FINALLY feels like a Big Kid. E Nut and Wing Nut are the Big Kids around here and while they fight like enemies, they love like brothers.
Thank you for praying!
After his Fontan on June 24th he went home after 6 days! Now we are back in the hospital waiting for fluid to stop draining from around his right lung.
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Little Nut Nut
Little Nut Nut is my 5 year old boy genius and totally freaks me out with the things he can do. What type of child learns to read at 3 years old?!? He is his Big Brothers shadow and wants to do what ever they do. He doesn't have any trouble letting everyone around here know what he thinks, has no inner voice and talks non-stop all day long. If he thinks it, he says it. He says things like "I love life" and "I am made of Awesome" and always makes me smile, even when I don't want to.
Wing Nut
My Wing Nut, 10 years old, is my first born and is a Lego Fanatic. He talks in his sleep about "interesting number combinations" and insists that he is going to work for Lego when he grows up. From the moment he gets the current issue of Lego magazine in the mail, he anticipates the arrival of the next one. He has crazy mood swings, has recently been diagnosed with ADHD but I am not so sure that is correct. He is considered Failure to Thrive and I struggle everyday to get him to gain weight, he keeps getting taller, but not gaining any weight. I think if we can figure out why he his Failure to Thrive, his ADHD will go away.
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