I had hopes and plans for this week. With 5 sick kids, none of it is getting done. As frustrating as it is, I am OK with it. The 3 big kids have had high fevers since last night and when I thought Owee’s had gone down, it came back. Honey Nut had the...Keep Reading Here »
After our awesome 1 hour family Wii Fit workout yesterday, Mr Wall Nut and I decided that we were going to start getting up at 5am to workout. We have been talking about it for months and were so close when daylight savings time messed up my schedule. Yes. I am still bitter, and...Keep Reading Here »
I would like to be able to try to organize my week. I am drawing a blank though. I have a so many things that need to be done and every day I wake up and feel like I have more to do than the day before. It is so frustrating trying to start...Keep Reading Here »
OK, so I have absolutely nothing to post about. It is obvious that between Owee & Honey Nut getting sick, being exhausted from no real sleep for several nights and my running out of Zoloft there was no time or energy for working out. Those two babies are still fairly sick. They both have...Keep Reading Here »
It is a very happy and blessed Thursday Y’all! I am so very Thankful for the overwhelming support and prayers sent to Owain this past week! I can’t even begin to tell you all how much it means to us! We went to UVa this afternoon for a follow up with peds cardiology. It...Keep Reading Here »
We are so grateful to everyone who has been praying for Owain and for all of your wonderful words of encouragement and support. *I was just getting ready to read over this post and check for random errors when Honey Nut woke up coughing, gagging and pulling for air. Fabulous. I spent about 20...Keep Reading Here »
Your prayers have been heard! Owain was having a difficult time yesterday, but everything started going really bad after his 3pm Xopenex treatement. Instead of helping his breathing, it made it worse. So we stopped giving it to him. He has had Xopenex before, so I don’t know why he had such a bad...Keep Reading Here »
And I am getting frustrated. Last night the ER doc thought he had an ear infection, but the doctor on call came in and said no ear infection. His pediatrician came in this morning and said that at least one ear was infected and the other one was red and swollen. That explains the...Keep Reading Here »
Sitting in the ER, again, wishing we weren’t here. The nurses are getting to know us. I recognize them, they recognize us. One of Owain’s ER nurses from last month told me she thinks about him often and has added him to her prayer list. So.Darn.Sweet. One of his nurses tonight was up working...Keep Reading Here »
We are so happy that we got to bring Owee home from the hospital today! It seems so much longer than one day, and I think it is going to take me a lot longer than one day to catch up on my lack of sleep. But the important thing is that we are...Keep Reading Here »
Owain has taken my computer hostage for pretty much the entire time we have been in the hospital. Earlier I got a ransom note that said unless you want me to scream all day, you will give me your computer and make sure that it is tuned into Nick Jr at all times. My...Keep Reading Here »
Ugh! I can’t believe there is still sickness going around our house! I think we are starting to get better, Owain is definitely much better than he was last night. His fever is way down and he is done throwing himself on the ground crying from discomfort. Tonight Honey Nut was the one who...Keep Reading Here »
At the moment, my house is a disaster. Doing the dishes consists of stacking them up so they take up the least amount of space. Picking up the toys consists of pushing them all in a pile at one end of the room. The bathroom hasn’t been cleaned in days and I am afraid...Keep Reading Here »
Yesterday Honey Nut was 18 months old. She had her 18 month well visit as well. I can’t believe that she is already 1 1/2 years old. She is running around the house trying to keep up with her brothers, copying everything they do and doing her best learn to talk. She can talk...Keep Reading Here »
This is a vlog of what we do every night after we put the big kids and Honey Nut in bed…although since Honey Nut has been sick, she has been working her way into cuddle time. One thing that I forgot to mention about today’s visit is that we checked Owee’s O2 sats, and...Keep Reading Here »
Honey Nut is the Latest and Last Addition to the Family. She is our 5th Little Nut and our 1st and only Little Girl. She spends her days pretty much running after her brothers and pretending she can talk. She has no trouble being heard around here and loves her big brothers as much as they love her. Right now it is pretty much her job to just hang out and be cute.
Owain is my 3 year old, my Little Heart Kid & my Hero. He is Double Inlet, Single Ventricle with Pulmonary Atresia and Malpositioned Great Arteries. He has had 3 out of 3 Open Heart surgeries needed to “fix” his heart. The Heart is an amazing thing and I never know what to expect. He also has asthma and we are doing our best to manage that. He finally had his last surgery on June 24th 2011.
Wee Nut and Honey Nut have become a pair of serious partners in crime. The two of them together can cause more trouble than the older three. They keep me on my toes!
Owain is our Miracle Baby. You can read his Congenital Heart Defect Story from the very beginning if you click on his picture.
E Nut is 8 and wicked crazy! He is my fearless child and spent much of his life thinking if he could just jump high enough he could fly. If I let him, he would play Wii all day long, that is IF I let him. He has no trouble waking up before 6am and made me a morning person when I never thought I would be. He recently lost his first tooth and FINALLY feels like a Big Kid. E Nut and Wing Nut are the Big Kids around here and while they fight like enemies, they love like brothers.
After his Fontan on June 24th he went home after 6 days! Now we are back in the hospital waiting for fluid to stop draining from around his right lung.
Little Nut Nut is my 5 year old boy genius and totally freaks me out with the things he can do. What type of child learns to read at 3 years old?!? He is his Big Brothers shadow and wants to do what ever they do. He doesn't have any trouble letting everyone around here know what he thinks, has no inner voice and talks non-stop all day long. If he thinks it, he says it. He says things like "I love life" and "I am made of Awesome" and always makes me smile, even when I don't want to.
My Wing Nut, 10 years old, is my first born and is a Lego Fanatic. He talks in his sleep about "interesting number combinations" and insists that he is going to work for Lego when he grows up. From the moment he gets the current issue of Lego magazine in the mail, he anticipates the arrival of the next one. He has crazy mood swings, has recently been diagnosed with ADHD but I am not so sure that is correct. He is considered Failure to Thrive and I struggle everyday to get him to gain weight, he keeps getting taller, but not gaining any weight. I think if we can figure out why he his Failure to Thrive, his ADHD will go away.
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