It is a very happy and blessed Thursday Y’all! I am so very Thankful for the overwhelming support and prayers sent to Owain this past week! I can’t even begin to tell you all how much it means to us! We went to UVa this afternoon for a follow up with peds cardiology. It...Keep Reading Here »
At 6:30am, 2 years ago today, I put my 13 hour old baby down to sleep. I had been up with him off and on all night long, trying to nurse him and hanging out with him. We were in a quiet little room. I was enjoying my first night with my Little Owee...Keep Reading Here »
Owain is a Great Look’n Kid! Most importantly, his Heart is looking Great! Owain had a peds cardiology appointment a few weeks ago. Do you remember last month when I finally posted an update about is December appointment? Here it is in this post. It took me a while to post and update because...Keep Reading Here »
A few weeks ago, we had another storm, I finally got around to posting pictures of the kids playing in the snow from that storm just the other day in this post. It turns out there was a traveler who had spent time in Mexico with my bloggy friend Jenn. After that he went...Keep Reading Here »
Somehow I didn’t manage to get pictures of everyone with their CHD Awareness stickers on…but every one got one when they walked in the door We had many of our MLH members there as well as several nurses and doctors from Peds Cardiology. I met and talked with a few families who were in...Keep Reading Here »
I didn’t realize until last night when I was think about his surgery last year, that the anniversary of his second surgery was another contributing factor in my feeling down. I think it affected me differently because it was something we had spend months planning. It was so much different than when Owee was...Keep Reading Here »
Yesterday was a good day. A long one, but still a good one. First bit of good news is that my 8 year old Wing-Nut is finally done (for the moment anyways) getting all of his cavities filled! Poor little guy has huge teeth, packed into a tiny little mouth and has such a...Keep Reading Here »
We went to the UVA Heart Center Picnic a few weekends ago. We thought about going last year, but it was the weekend after Owain was released from the hospital and we were so happy to have him home we had no desire to go back after everything we had be through. It was...Keep Reading Here »
I know I should have posted here sooner, but I haven’t had more than a minute or two to try to sit down at the computer. Owain came home last Wednesday, October 15th. It is amazing that he was only in the hospital for a week and a day after having major bilateral open...Keep Reading Here »
Owain is still in the PICU. We were hoping that he would be out on the floor by now, but his lungs and a high fever have been keeping him here. His fever has been dropping most of this evening. He has some fluid both in his lungs and around his lungs, so his...Keep Reading Here »
Owain came out of surgery around noon today,Yippie! He is doing well. He still hasn’t woken up yet & is still on a bit of pain killers. We are waiting for his pain meds to wear off and most likely they will be able to take him off the respirator early this evening. He...Keep Reading Here »
We are getting ready for Owain’s next surgery. He is going in for the Glenn Procedure. I was looking for a good definition to explain it better, but I am not finding one right now. I think I mentioned it in earlier posts. We are going back to UVA Children’s Hospital on Monday October...Keep Reading Here »
My second son E Nut has a friend from school who’s mother gifted us with a Prayer Quilt for Owain. She and some of her friends from her church made it for him. It came with instructions that reads: “Each knot tied represents a prayer that was said specifically for you. Notice that the...Keep Reading Here »
Things went really well! His heart looks good & he is a good candidate for the next surgery, but we are not in a rush, rush position any more. His doctor said that we might even be able to put off the next surgery until closer to the end of September instead of at...Keep Reading Here »
I think I feel OK about this. I knew it was coming so I have been trying to prepare myself. Of course I am sad, I am worried, I am scared, but I am OK with it. It has to be done. At least I am TRYING to be OK with this. We had...Keep Reading Here »
Honey Nut is the Latest and Last Addition to the Family. She is our 5th Little Nut and our 1st and only Little Girl. She spends her days pretty much running after her brothers and pretending she can talk. She has no trouble being heard around here and loves her big brothers as much as they love her. Right now it is pretty much her job to just hang out and be cute.
Owain is my 3 year old, my Little Heart Kid & my Hero. He is Double Inlet, Single Ventricle with Pulmonary Atresia and Malpositioned Great Arteries. He has had 3 out of 3 Open Heart surgeries needed to “fix” his heart. The Heart is an amazing thing and I never know what to expect. He also has asthma and we are doing our best to manage that. He finally had his last surgery on June 24th 2011.
Wee Nut and Honey Nut have become a pair of serious partners in crime. The two of them together can cause more trouble than the older three. They keep me on my toes!
Owain is our Miracle Baby. You can read his Congenital Heart Defect Story from the very beginning if you click on his picture.
E Nut is 8 and wicked crazy! He is my fearless child and spent much of his life thinking if he could just jump high enough he could fly. If I let him, he would play Wii all day long, that is IF I let him. He has no trouble waking up before 6am and made me a morning person when I never thought I would be. He recently lost his first tooth and FINALLY feels like a Big Kid. E Nut and Wing Nut are the Big Kids around here and while they fight like enemies, they love like brothers.
After his Fontan on June 24th he went home after 6 days! Now we are back in the hospital waiting for fluid to stop draining from around his right lung.
Little Nut Nut is my 5 year old boy genius and totally freaks me out with the things he can do. What type of child learns to read at 3 years old?!? He is his Big Brothers shadow and wants to do what ever they do. He doesn't have any trouble letting everyone around here know what he thinks, has no inner voice and talks non-stop all day long. If he thinks it, he says it. He says things like "I love life" and "I am made of Awesome" and always makes me smile, even when I don't want to.
My Wing Nut, 10 years old, is my first born and is a Lego Fanatic. He talks in his sleep about "interesting number combinations" and insists that he is going to work for Lego when he grows up. From the moment he gets the current issue of Lego magazine in the mail, he anticipates the arrival of the next one. He has crazy mood swings, has recently been diagnosed with ADHD but I am not so sure that is correct. He is considered Failure to Thrive and I struggle everyday to get him to gain weight, he keeps getting taller, but not gaining any weight. I think if we can figure out why he his Failure to Thrive, his ADHD will go away.
Copyright © 2008 - 2012 The Nut House. All Rights Reserved. Magazine Basic theme designed by Themes by bavotasan.com. . Powered by WordPress.
