I had to check the actual day to make sure it was in fact Wednesday. It is. Then I was gonna do a Wordless Wednesday post, but then I realized that I haven’t taken hardly any pictures of anyone in MONTHS. What I did find was hundreds of photos from our pre-surgery Hershey Park...Keep Reading Here »
In case you are wondering, and missed the news last week, we are actually home If feels so good. And a bit lonely. And very quiet! And Owain had a clinic appointment with peds cardiology yesterday and there is no fluid building up since we have been home! *doing some serious amounts of cartwheels*Keep Reading Here »
I just realized that today is Friday. That means that we are only 1 week a way from Owain’s surgery. Today though, we had a great time at the park, such a great time that I didn’t even think about what day it was once. I took hundreds of photos, way too many to...Keep Reading Here »
We haven’t even made it to the park yet and we are having a great time already! We are enjoying time together, time in the pool and time forgetting about everything that has been weighing so heavily on us. When we checked into our room yesterday there was a little package waiting for us....Keep Reading Here »
May 29, 2008 was one of the best days of my life. After close to 4 weeks in the hospital, after being told over and over that he could go home, only to be kept another day, we brought Owain home. It was such a surreal feeling. I was starting to feel like...Keep Reading Here »
Little Nut Nut likes to sleep in his tent. In his bedroom. On a bed made of all the extra blankets we have. And he loves it.Keep Reading Here »
After our awesome 1 hour family Wii Fit workout yesterday, Mr Wall Nut and I decided that we were going to start getting up at 5am to workout. We have been talking about it for months and were so close when daylight savings time messed up my schedule. Yes. I am still bitter, and...Keep Reading Here »
I am not sure how Honey Nut and Wee Nut got into my bedroom today, the gate to my studio was closed (or so I thought!) and no one is allowed in our bedroom, or my studio. We walk through my studio to get to our bedroom, so there was all sorts of naughty...Keep Reading Here »
Little Nut Nut is known for his non-stop talking. He can chat on and on about anything. All.Day.Long. There is a good amount of his ramblings that are way over my head and many times I have no idea what he is talking about. But he talks with such excitement, it is easy to...Keep Reading Here »
My parents are here are visiting for Owain’s birthday and we had some cake and ice cream and of course presents His actual birthday is on Tuesday the 3rd and today we kicked off his birthday week. While I had the kids all dressed up looking sharp, I thought I would try to get...Keep Reading Here »
My goodness I love my kids. And they love Harry Potter! My kids all have robes from the House of Gryffindor and they all have a tie and a wand. They get up, but their robes on and suddenly I am transported to Hogwarts Castle, fun accents and all.Keep Reading Here »
I woke up this morning, looked at my babies and they both look older than they did last night when we went to bed. And really, Wee Nut is almost 3 and Honey Nut will be 2 in July, so neither one of them are really babies any more.Keep Reading Here »
Happy Thursday Y’all! After last week’s storm, this beautiful week was just what we needed. Warm weather, open windows, a dry basement and hot water. We are so thankful for all of those things! Tonight we managed to get the kids out the door after dinner for an evening walk, something that we haven’t...Keep Reading Here »
E Nut had baseball practice today. We only had to go to 3 different parks to figure out which one the practice was supposed to be at. While he was practicing, the other 4 kids played on the playground. I don’t usually go to the park with all the kids by myself. The older...Keep Reading Here »
Mended Little Hearts of Charlottesville’s main purpose is to really focus on inpatient families at UVa. I have met very few families who live locally, most of the families we meet are from several hours away. The past couple of months we have been leaving food at the hospital and trying to figure out...Keep Reading Here »
Honey Nut is the Latest and Last Addition to the Family. She is our 5th Little Nut and our 1st and only Little Girl. She spends her days pretty much running after her brothers and pretending she can talk. She has no trouble being heard around here and loves her big brothers as much as they love her. Right now it is pretty much her job to just hang out and be cute.
Owain is my 3 year old, my Little Heart Kid & my Hero. He is Double Inlet, Single Ventricle with Pulmonary Atresia and Malpositioned Great Arteries. He has had 3 out of 3 Open Heart surgeries needed to “fix” his heart. The Heart is an amazing thing and I never know what to expect. He also has asthma and we are doing our best to manage that. He finally had his last surgery on June 24th 2011.
Wee Nut and Honey Nut have become a pair of serious partners in crime. The two of them together can cause more trouble than the older three. They keep me on my toes!
Owain is our Miracle Baby. You can read his Congenital Heart Defect Story from the very beginning if you click on his picture.
E Nut is 8 and wicked crazy! He is my fearless child and spent much of his life thinking if he could just jump high enough he could fly. If I let him, he would play Wii all day long, that is IF I let him. He has no trouble waking up before 6am and made me a morning person when I never thought I would be. He recently lost his first tooth and FINALLY feels like a Big Kid. E Nut and Wing Nut are the Big Kids around here and while they fight like enemies, they love like brothers.
After his Fontan on June 24th he went home after 6 days! Now we are back in the hospital waiting for fluid to stop draining from around his right lung.
Little Nut Nut is my 5 year old boy genius and totally freaks me out with the things he can do. What type of child learns to read at 3 years old?!? He is his Big Brothers shadow and wants to do what ever they do. He doesn't have any trouble letting everyone around here know what he thinks, has no inner voice and talks non-stop all day long. If he thinks it, he says it. He says things like "I love life" and "I am made of Awesome" and always makes me smile, even when I don't want to.
My Wing Nut, 10 years old, is my first born and is a Lego Fanatic. He talks in his sleep about "interesting number combinations" and insists that he is going to work for Lego when he grows up. From the moment he gets the current issue of Lego magazine in the mail, he anticipates the arrival of the next one. He has crazy mood swings, has recently been diagnosed with ADHD but I am not so sure that is correct. He is considered Failure to Thrive and I struggle everyday to get him to gain weight, he keeps getting taller, but not gaining any weight. I think if we can figure out why he his Failure to Thrive, his ADHD will go away.
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