The Nut House

Owain’s Prayer Quilt

My second son E Nut has a friend from school who’s mother gifted us with a Prayer Quilt for Owain. She and some of her friends from her church made it for him. It came with instructions that reads: “Each knot tied represents a prayer that was said specifically for you. Notice that the...
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Owain had his cath procedure today

Things went really well! His heart looks good & he is a good candidate for the next surgery, but we are not in a rush, rush position any more. His doctor said that we might even be able to put off the next surgery until closer to the end of September instead of at...
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Moving forward with Owain’s next surgery

I think I feel OK about this. I knew it was coming so I have been trying to prepare myself. Of course I am sad, I am worried, I am scared, but I am OK with it. It has to be done. At least I am TRYING to be OK with this. We had...
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Owain is OK for now

Well his O2 levels are still low, but they did spend a bit more time in the lower 70s today at the hospital. They did an EKG and an Echo and everything looks good. His usual cardiologist is out this week & he saw another Dr, so I don’t really have any answers. She...
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Taking Owain to UVA today

So if you didn’t see yesterdays post, read that first and then come back up here to read this one. His O2 sats are still low again this morning and his pediatric cardiologists want to see him this afternoon. They are in the 61 to 72 range, mostly in the mid 60s. Wing Nut...
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This is Soo not what I wanted to post about Owain, but

I have been hoping to get some more pictures of Owain posted here, but the day keeps getting away from me. He is getting bigger, smiling, babbling. He is a happy little guy & he loves to laugh & has finally become ticklish…I love to tickle my little beastie boys! Everything healed well, and...
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How to Stay Healthy When Your Newborn Ends Up in the NICU

Bringing a baby into the world is an amazing and wonderful thing. Most of the time the only things a new mom will have to worry about after delivery is how to get enough rest, when to find time to take care of herself and of course how to care for the new baby...
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I found a new feature on the candle site!

After writing the article How to Light a Candle Online to Pray for a Loved One I contacted Gratefulness.org to let them know. They told me that there is a way to create an entrance page just for Owain’s candle. I just did it & it is pretty cool! So here is his new...
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Owain is home!!!

He actually came home last Thursday May 29th! We have been getting settled, going to different Dr visits and trying to get some rest. The kids are so excited to have him home. It was very strange for them to be with out their parents for so long. They were just as disappointed every...
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Still waiting for Owain to come home…

Owain is still at UVA & we are starting to feel like he will never come home. I have been leaving as early as I can after getting the kids off to school & staying until 7pm or later so that I can nurse him. He has had some really good days with his...
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Getting better every day!

Lots of changes have happened since last Friday! Friday night when they moved Owain back to NICU. We first got moved from NICU to PICU because they ran out of room in NICU & they send heart babies to PICU after surgery, so it that is just the way they do it. So now...
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Owain is getting better

Owain is doing much better this week! He is pink & plump & full of life! They were able to take him off of the respirator yesterday! It is so wonderful to be able to see his face again & to hear him cry. He is still a bit of a cranky head, but...
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Surgery went perfectly!!

Just wanted to pop in quickly & let every one know that Owain’s surgery on Monday went perfectly & he is doing great. They have been able to start taking him off of different meds & are hoping to have him off the respirator by tomorrow. He looks wonderful! It is such a relief...
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