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I am Not as Strong as I appear. I enjoy weakness from time to time. We are a homeschooling, special needs family of 7. My 4th son has a Congenital Heart defect, and my oldest has ADHD. We like to find old things and make them new, so we bought a house that was in desperate need of repair, then we doubled the sized of it. This project is well over 9 years long, with still plenty to do, and has pushed my fear of heights over the limit too many times. The best part is I am still alive to talk about it! Some of my passions are my children, and making Jewelry. When life gets stressful (often times stress induced by children!) opening up my bins of beads to create something beautiful that will soon bring joy to someone else is all I need. That and chocolate. I am just hanging on by the seat of my pants. Stick around & let's get to know each other.

♥ Heart Prayers

This poem used to be on one of the sidebars, but I thought I would add it here with some of the CHD families that we pray for. Below the poem is a list of amazing Heart Families with links to their stories. It is a growing list based on the time I have to build it. If you are not on it yet it is just because there is never enough time in my day…but send me an email and let me know you or your child is a CHD Heart Hero!

A Mothers Perspective

~ by Stephanie Husted ~

You passed me in the shopping mall…(You read my faded tee) You tapped me on the shoulder…Then asked…”What’s a CHD?” I could quote terminology…There’s stats that I could give…But I would rather share with you…A mother’s perspective.

What is it like to have a child with a CHD?
It’s Lasix,aspirin,Captopril…
It’s wondering…Lord what’s your will?…
It’s monitors and oxygen tanks…
It’s a constant reminder to always give thanks…
It’s feeding tubes, calories, needed weight gain…
It’s the drama of eating…and yes it’s insane!
It’s the first time I held him…(I’d waited so long)
It’s knowing that I need to help him grow strong…
It’s making a hospital home for awhile…
It’s seeing my reward in every smile.
It’s checking his sats as the feeding pump’s beeping…
It’s knowing that there is just no time for sleeping…
It’s caths, x-rays and boo boos to kiss…
It’s normalcy I sometimes miss…
It’s asking do his nails look blue?
It’s cringing inside at what he’s been through.
It’s dozens of calls to his pediatrician…(She knows me by name…I’m a mom on a mission)
It’s winters homebound…and hand sanitizer…
It’s knowing this journey has made me much wiser.
It’s watching him sleeping…his breathing is steady…
It’s surgery day and I’ll never be ready.
It’s handing him over…( I’m still not prepared…)
It’s knowing that his heart must be repaired…
It’s waiting for news on that long stressful day…
It’s …praying…it’s hoping…that he’ll be okay.
It’s the wonderful friends with whom I’ve connected…
It’s the bond that we share…it was so unexpected…
It’s that long faded scar down my child’s small chest…
It’s touching it gently and knowing we’re blessed…
It’s watching him chasing a small butterfly…
It’s the moment I realized I’ve stopped asking why?
It’s the snowflakes that fall on a cold winter’s day…
(They remind me of those who aren’t with us today)
It’s a brave little boy who loved Thomas the train…
Or a special heart bear…or a frog in the rain….
It’s the need to remember we’re all in this plight….
It’s their lives that remind us we still need to fight!
It’s in pushing ahead amidst every sorrow…
It is finding the strength to have hope for tomorrow.