Posts Tagged ‘ Cath Procedure ’

Home from The Hospital

Dr Devanagondi implanted the amplatzer device to close the fenestration, everything went great, and they were able to close up the fenestration. The team here is wonderful and I couldn’t be happier with the Heart Team at Golisano Children’s. He had an Echo, EKG, and x-rays, everything looked great and we bounced out! With...
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Closing Owain’s Fenestration at Golisano Children’s

It’s a Cath Lab day for Owain! He got the fenestration closed from his Fontan procedure when he was 3. This is his first procedure at Golisano Children’s. We miss the team at UVa Medical Center, but have tons of faith in his new hospital and the team here, they have been great to...
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Random Thoughts from a Tired Mama

I have looked back over some of my posts from the past few days and they seem to be a bit rambly (if that is a word) and may or may not make any sense. Somehow I am am OK with that, lol. So in keeping up with tired rambling I need to share...
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Photos from Owain’s Heart Cath

I was too tired to unpack my camera and upload the photos last night, but I manged to get to it today. I wish I would have gotten a few videos as well, he was such a funny little boy. It is interesting how easily he settles in soaks up everything around him.  ...
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Quick Update on Owain’s Heart Cath with Decisions to be Made

It has been a long day. I didn’t sleep much, or well last night and not that my day is over I don’t have much energy left. Everything went great. We ended up going in much later than scheduled, which made for a long morning for Owain. We were scheduled for 9:30 and it...
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Owain’s Heart Cath Monday May 16

I like to think that I have been doing a pretty good job holding myself together. Between his birthday on the 3rd and thinking about his first surgery 3 years ago, and his up coming Heart Cath tomorrow and surgery next month, I have had plenty to freak out over. I have really tried...
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Thinking of Baby Owee

Today I was thinking about Wee Nut’s first couple of days and weeks after he came home from the hospital after his first open heart surgery. Today is the anniversary of his failed cath procedure at 6 days old. Dr Limm was hoping that he could go in and put a stent in to...
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Thankful Thursday

Thankful Thursday at The Nut House

Happy Thursday Y’all! I got a call from UVa today. They called to schedule Owain’s Cath procedure in May, his Pre-op appointment June 23rd and Surgery date for the Fontan on June 24th. Owain’s surgery is June 24th. Sigh. Cry. Vomit. Faint. Fall apart. I am Thankful for all of the support and encouragement...
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A Year Ago Today My Wee Nut Had His Second Heart Surgery

I didn’t realize until last night when I was think about his surgery last year, that the anniversary of his second surgery was another contributing factor in my feeling down. I think it affected me differently because it was something we had spend months planning. It was so much different than when Owee was...
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Owain had his cath procedure today

Things went really well! His heart looks good & he is a good candidate for the next surgery, but we are not in a rush, rush position any more. His doctor said that we might even be able to put off the next surgery until closer to the end of September instead of at...
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Moving forward with Owain’s next surgery

I think I feel OK about this. I knew it was coming so I have been trying to prepare myself. Of course I am sad, I am worried, I am scared, but I am OK with it. It has to be done. At least I am TRYING to be OK with this. We had...
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Getting better every day!

Lots of changes have happened since last Friday! Friday night when they moved Owain back to NICU. We first got moved from NICU to PICU because they ran out of room in NICU & they send heart babies to PICU after surgery, so it that is just the way they do it. So now...
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Owain is Doing Better

A lot has happened in the past few days. Some good and some not so good. He has been in critical but stable condition for the past few days. We were excited when it was determined that an interventionist could try a cath procedures which is a less invasive procedure. That was scheduled for...
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