Posts Tagged ‘ CHD Awareness ’

Mended Little Hearts of Charlottesville CHD Awareness Week

 
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Follow up to Request of Proclaimation For Congenital Heart Defect Awareness Week

Last night I was talking to Will about this, and realized that the General Assembly is meeting next week. For some reason, I was thinking the were meeting with the new Governor after the inauguration in a few weeks. Honestly, I never thought I would think about when the General Assembly would meet and...
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My Letter Requesting a Proclamation from Governor Kaine Concerning Congenital Heart Defect Awareness Week

I actually got the main body of this letter from the the Congenital Heart Information Network (CHIN) and added my own personal touch. If you would like to send a request of a Proclamation to your governor, CHIN has a basic letter that you can use along with a rough draft of a proclamation...
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Mended Little Hearts got a tour of the C’ville airport and the news was there to cover it! Very cool :)

Yesterday Mended Little Hearts of Charlottesville got a tour of the Charlottesville-Albemarle Airport. We got a tour of the behind the scenes activity. They took us behind the check in desk and we got to see where the luggage goes. Then they took us out back and the kids got to watch the airplanes...
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Thankful Thursday

Thankful Thursday at The Nut House

Life can be crazy sometimes, so it is nice to take a minute to think about all the wonderful things we have and think about all the things we are Thankful for. You can also read about what prompted me to start Thankful Thursdays. I would love it if you would join me in...
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Vote to See Congenital Heart Defects on The Doctors

I would love to see an episode of The Doctors devoted to Congenital Heart Defects. I have also added a link to my sidebar to vote, but I thought I would add a quick post as well. Congenital Heart Defects affect about 1 in 100 babies, making it the most common birth defect. This...
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Today Owain is 15 Months Old, Comparing Him & Newborn Ariel

It is hard to believe that I just had a baby less than 2 weeks ago and today my little Owain is just 15 months old. It is a bit strange to have two babies around the house so close together. When the other kids were born, their siblings were much older and while...
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Good News is so Good, Some News is Not so Good Though

Yesterday was a good day. A long one, but still a good one. First bit of good news is that my 8 year old Wing-Nut is finally done (for the moment anyways) getting all of his cavities filled! Poor little guy has huge teeth, packed into a tiny little mouth and has such a...
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UVA Heart Center Reunion Picnic & Mended Little Hearts

We went to the UVA Heart Center Picnic a few weekends ago. We thought about going last year, but it was the weekend after Owain was released from the hospital and we were so happy to have him home we had no desire to go back after everything we had be through. It was...
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Owain is home!!!

He actually came home last Thursday May 29th! We have been getting settled, going to different Dr visits and trying to get some rest. The kids are so excited to have him home. It was very strange for them to be with out their parents for so long. They were just as disappointed every...
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Still waiting for Owain to come home…

Owain is still at UVA & we are starting to feel like he will never come home. I have been leaving as early as I can after getting the kids off to school & staying until 7pm or later so that I can nurse him. He has had some really good days with his...
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Getting better every day!

Lots of changes have happened since last Friday! Friday night when they moved Owain back to NICU. We first got moved from NICU to PICU because they ran out of room in NICU & they send heart babies to PICU after surgery, so it that is just the way they do it. So now...
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Owain is getting better

Owain is doing much better this week! He is pink & plump & full of life! They were able to take him off of the respirator yesterday! It is so wonderful to be able to see his face again & to hear him cry. He is still a bit of a cranky head, but...
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