Posts Tagged ‘ CHD ’

Home from The Hospital

Dr Devanagondi implanted the amplatzer device to close the fenestration, everything went great, and they were able to close up the fenestration. The team here is wonderful and I couldn’t be happier with the Heart Team at Golisano Children’s. He had an Echo, EKG, and x-rays, everything looked great and we bounced out! With...
CONTINUE READING »

Closing Owain’s Fenestration at Golisano Children’s

It’s a Cath Lab day for Owain! He got the fenestration closed from his Fontan procedure when he was 3. This is his first procedure at Golisano Children’s. We miss the team at UVa Medical Center, but have tons of faith in his new hospital and the team here, they have been great to...
CONTINUE READING »

Owain wakeboarding at Massanutten Water Park

The kids are going to the YMCA Summer came & they had a field trip to Massanutten Water Park on Ariel’s Birthday, I took the day off to go with them. I am so over the top proud of my Heart Warrior for getting on the wake board!   *Edited to add that the...
CONTINUE READING »

CHD Facts and Statistics CHD Awareness Week 2013

CHD Facts and Statistics CHD Awareness Week 2013

How well do you know your CHD Facts? If you are telling your CHD Story, Raising Awareness, or reaching out to the media for CHD Awareness Week, double check your facts. With more Awareness comes more research, and statistics can change from year to year. These are some of the latest Facts & Statistics...
CONTINUE READING »

Reasons Why I Homeschool – My Five Nuts – Four Boys and One Little Girl

Reasons Why I Homeschool – My Five Nuts – Four Boys and One Little Girl

From the moment I knew I was pregnant, I knew I was going to Homeschool my children. By the time my oldest children were school age, I wasn’t ready and sent them to Montessori School first, and then to public school. Making the choice to send my kids to public school was one that...
CONTINUE READING »

Way-Back Wednesday

I had to check the actual day to make sure it was in fact Wednesday. It is. Then I was gonna do a Wordless Wednesday post, but then I realized that I haven’t taken hardly any pictures of anyone in MONTHS. What I did find was hundreds of photos from our pre-surgery Hershey Park...
CONTINUE READING »

A Step Back

Looking back at this past summer, I remember the both the fear of Owain’s upcoming surgery and the excitement of our pre-surgery vacation to Hershey Park. I could do without the fear, but I sure could use a vacation from life right now.
CONTINUE READING »

Slipping Away

Time. Life. Money. No matter how hard we try, it all just Slips Away. You know the saying “If you don’t have anything nice to say, don’t say anything at all”? I guess that is me. Well not entirely.
CONTINUE READING »

Yep, we’re home

In case you are wondering, and missed the news last week, we are actually home 🙂 If feels so good. And a bit lonely. And very quiet! And Owain had a clinic appointment with peds cardiology yesterday and there is no fluid building up since we have been home! *doing some serious amounts of...
CONTINUE READING »

Been Here One Week with No Sign of Leaving Anytime Soon

Passed out after running the halls and riding in the wagon

We are fully immersed in the up and down ride that is the recovery of the Fontan. We have been back in the hospital for 1 week, the days are blurring into one another and time is only really important when it comes to giving my Little Owee his meds. I think it was...
CONTINUE READING »

Hanging at the Hospital Again

Owain is sitting here at UVa Children’s doing puzzles after actually eating a good lunch. I am guessing the nurse will come in to check on us any minute now. I think he has some meds due soon & with any luck they will come in before he gets sleepy and takes a nap....
CONTINUE READING »

Super Quick Surgery Update!

I can’t believe how much time has gone by since his surgery, and since we have been home! Owain is doing great, we were sent home only 6 days post fontan. Unbelieveable! His brothers planned a surprise party for him, decorated the living room and gathered all of his favorite things. Everyone was full...
CONTINUE READING »

Owain Pre-Op

I have been taking photos of my Little Wee Nut for days. While we were waiting in the pre-op room last Friday before his Fontan, I got this photo of Owee with Daddy. This was after he had his dose of versed and was feeling a little silly.
CONTINUE READING »




Visit Us On YoutubeVisit Us On TwitterVisit Us On FacebookVisit Us On InstagramVisit Us On PinterestVisit Us On Linkedin