Posts Tagged ‘ Open Heart Surgery ’

He Almost Died. But He Didn’t.

Three years ago, today was Mother’s Day. The day started with a phone call to UVa to talk to Owain’s nurse to see how things went overnight, after getting off the phone with her I thought that while things were not really getting better, they weren’t getting worse. I spent some time with his...
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Thinking of Baby Owee

Today I was thinking about Wee Nut’s first couple of days and weeks after he came home from the hospital after his first open heart surgery. Today is the anniversary of his failed cath procedure at 6 days old. Dr Limm was hoping that he could go in and put a stent in to...
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Random Thoughts of a CHD Mom

We had an amazing Mended Little Hearts meeting tonight. Our 3 leaders live in different towns and only really get to see each other once a month. It has always made planning for the group a bit difficult. We had a leaders meeting tonight and were able to sit down and talk about our...
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Thankful Thursday

Thankful Thursday at The Nut House

Happy Thursday Y’all! I got a call from UVa today. They called to schedule Owain’s Cath procedure in May, his Pre-op appointment June 23rd and Surgery date for the Fontan on June 24th. Owain’s surgery is June 24th. Sigh. Cry. Vomit. Faint. Fall apart. I am Thankful for all of the support and encouragement...
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Wordless Wedneday {Wee Nut Before & After Glenn Procedure 2008}


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Peds Cardiology Visit on a 2 Year Surgerversary and a Thankful Thursday

When I woke up this morning, the only thing I had on my mind was Owain’s Peds Cardiology check up. I always get very anxious on his check up days. I always worry that things are not going as well as they seem. Or that there is something happening right in front of me...
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The Impossible Update

I try to keep things light around here, but I did warn a few weeks ago that you might just come across some whining and complaining this month. I am full of whine this week, unfortunately it is not nearly as fun as being full of wine. This week has been an emotionally and...
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Happy 2nd Birthday Owain!! (part 2) The Day I Became a Heart Mom

How I Became a Heart Mom. CHD Awareness.

At 6:30am, 2 years ago today, I put my 13 hour old baby down to sleep. I had been up with him off and on all night long, trying to nurse him and hanging out with him. We were in a quiet little room. I was enjoying my first night with my Little Owee...
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Great News from Peds Cardiology! Owee is a Lucky Boy and Mama Just Might Loose it

Owain is a Great Look’n Kid! Most importantly, his Heart is looking Great! Owain had a peds cardiology appointment a few weeks ago. Do you remember last month when I finally posted an update about is December appointment? Here it is in this post. It took me a while to post and update because...
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A Year Ago Today My Wee Nut Had His Second Heart Surgery

I didn’t realize until last night when I was think about his surgery last year, that the anniversary of his second surgery was another contributing factor in my feeling down. I think it affected me differently because it was something we had spend months planning. It was so much different than when Owee was...
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How To Give Your Heart Baby Their Daily Aspirin

How To Give Your Heart Baby Their Daily Aspirin

Your newborn has just come home from the hospital after having Heart Surgery and now it is up to you to take care of your baby. In the hospital, either you had help giving him his medications or the nurses did it for you. You have been given all the information you need to...
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Thankful Thursday

Thankful Thursday at The Nut House

The past 9 days since A5 was born have been flying by so quickly I hardly have time to think. Last week while I was in the hospital I got my days all mixed up and at some point on Friday I realized that it was not Monday. I completely missed Thankful Thursdays last...
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Owain is Doing Great & Recovering Quickly!

Owain is recovering very well & sooo very quickly! I am amazed at how much quicker this recovery is. I did mistake his crankiness with a double ear infection for crankiness because of his surgery…which left me with bad mommy feelings, but I know I can’t know everything, so I am working on forgiving...
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Owain is home :)

I know I should have posted here sooner, but I haven’t had more than a minute or two to try to sit down at the computer. Owain came home last Wednesday, October 15th. It is amazing that he was only in the hospital for a week and a day after having major bilateral open...
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Owain is recovering slowly

Owain is still in the PICU. We were hoping that he would be out on the floor by now, but his lungs and a high fever have been keeping him here. His fever has been dropping most of this evening. He has some fluid both in his lungs and around his lungs, so his...
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Another Successful Surgery :)

Owain came out of surgery around noon today,Yippie! He is doing well. He still hasn’t woken up yet & is still on a bit of pain killers. We are waiting for his pain meds to wear off and most likely they will be able to take him off the respirator early this evening. He...
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