May 29, 2008 was one of the best days of my life. After close to 4 weeks in the hospital, after being told over and over that he could go home, only to be kept another day, we brought Owain home. It was such a surreal feeling. I was starting to feel like...Keep Reading Here »
Happy Thursday Y’all! I spent the day with my little Owee. I am Thankful for every day I have with him. Three years ago today Dr Peeler saved his life and every moment of his life is a blessing. I am Thankful I made it through the day without breaking down and crying. I...Keep Reading Here »
Three years ago, today was Mother’s Day. The day started with a phone call to UVa to talk to Owain’s nurse to see how things went overnight, after getting off the phone with her I thought that while things were not really getting better, they weren’t getting worse. I spent some time with his...Keep Reading Here »
He actually came home last Thursday May 29th! We have been getting settled, going to different Dr visits and trying to get some rest. The kids are so excited to have him home. It was very strange for them to be with out their parents for so long. They were just as disappointed every...Keep Reading Here »
Owain is still at UVA & we are starting to feel like he will never come home. I have been leaving as early as I can after getting the kids off to school & staying until 7pm or later so that I can nurse him. He has had some really good days with his...Keep Reading Here »
Owain is doing much better this week! He is pink & plump & full of life! They were able to take him off of the respirator yesterday! It is so wonderful to be able to see his face again & to hear him cry. He is still a bit of a cranky head, but...Keep Reading Here »
Just wanted to pop in quickly & let every one know that Owain’s surgery on Monday went perfectly & he is doing great. They have been able to start taking him off of different meds & are hoping to have him off the respirator by tomorrow. He looks wonderful! It is such a relief...Keep Reading Here »
We just heard from one of the Cardiac fellow & Owain is not responding to the meds as well today as he was yesterday. So surgery has been pushed up to first thing tomorrow morning. He is first on the schedule & he will be going down for prep around 6:30am & starting surgery...Keep Reading Here »
Honey Nut is the Latest and Last Addition to the Family. She is our 5th Little Nut and our 1st and only Little Girl. She spends her days pretty much running after her brothers and pretending she can talk. She has no trouble being heard around here and loves her big brothers as much as they love her. Right now it is pretty much her job to just hang out and be cute.
Owain is my 3 year old, my Little Heart Kid & my Hero. He is Double Inlet, Single Ventricle with Pulmonary Atresia and Malpositioned Great Arteries. He has had 3 out of 3 Open Heart surgeries needed to “fix” his heart. The Heart is an amazing thing and I never know what to expect. He also has asthma and we are doing our best to manage that. He finally had his last surgery on June 24th 2011.
Wee Nut and Honey Nut have become a pair of serious partners in crime. The two of them together can cause more trouble than the older three. They keep me on my toes!
Owain is our Miracle Baby. You can read his Congenital Heart Defect Story from the very beginning if you click on his picture.
E Nut is 8 and wicked crazy! He is my fearless child and spent much of his life thinking if he could just jump high enough he could fly. If I let him, he would play Wii all day long, that is IF I let him. He has no trouble waking up before 6am and made me a morning person when I never thought I would be. He recently lost his first tooth and FINALLY feels like a Big Kid. E Nut and Wing Nut are the Big Kids around here and while they fight like enemies, they love like brothers.
After his Fontan on June 24th he went home after 6 days! Now we are back in the hospital waiting for fluid to stop draining from around his right lung.
Little Nut Nut is my 5 year old boy genius and totally freaks me out with the things he can do. What type of child learns to read at 3 years old?!? He is his Big Brothers shadow and wants to do what ever they do. He doesn't have any trouble letting everyone around here know what he thinks, has no inner voice and talks non-stop all day long. If he thinks it, he says it. He says things like "I love life" and "I am made of Awesome" and always makes me smile, even when I don't want to.
My Wing Nut, 10 years old, is my first born and is a Lego Fanatic. He talks in his sleep about "interesting number combinations" and insists that he is going to work for Lego when he grows up. From the moment he gets the current issue of Lego magazine in the mail, he anticipates the arrival of the next one. He has crazy mood swings, has recently been diagnosed with ADHD but I am not so sure that is correct. He is considered Failure to Thrive and I struggle everyday to get him to gain weight, he keeps getting taller, but not gaining any weight. I think if we can figure out why he his Failure to Thrive, his ADHD will go away.
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