Today is Cora’s 1st birthday. Cora is an amazing little girl. Cora’s Mama, Kristine Brite, is an amazing mother. Together Cora and Kristine Save Lives. I am sure that you have seen Cora’s button over on the side of my website. Cora’s Story is full of heartbreak and sadness, of strength and weakness, and...Keep Reading Here »
Mended Little Heart National Organization is in the running to receive a $50,000 grant from the Pepsi Refresh Project. It is very easy to vote, all you have to do is visit the Pepsi Refresh Project webpage for Mended Little Hearst every day and vote. It is even easier if you have a facebook...Keep Reading Here »
A few weeks ago, we had another storm, I finally got around to posting pictures of the kids playing in the snow from that storm just the other day in this post. It turns out there was a traveler who had spent time in Mexico with my bloggy friend Jenn. After that he went...Keep Reading Here »
Somehow I didn’t manage to get pictures of everyone with their CHD Awareness stickers on…but every one got one when they walked in the door We had many of our MLH members there as well as several nurses and doctors from Peds Cardiology. I met and talked with a few families who were in...Keep Reading Here »
Yesterday Mended Little Hearts of Charlottesville got a tour of the Charlottesville-Albemarle Airport. We got a tour of the behind the scenes activity. They took us behind the check in desk and we got to see where the luggage goes. Then they took us out back and the kids got to watch the airplanes...Keep Reading Here »
Life can be crazy sometimes, so it is nice to take a minute to think about all the wonderful things we have and think about all the things we are Thankful for. You can also read about what prompted me to start Thankful Thursdays. I would love it if you would join me in...Keep Reading Here »
It is hard to believe that I just had a baby less than 2 weeks ago and today my little Owain is just 15 months old. It is a bit strange to have two babies around the house so close together. When the other kids were born, their siblings were much older and while...Keep Reading Here »
Yesterday was a good day. A long one, but still a good one. First bit of good news is that my 8 year old Wing-Nut is finally done (for the moment anyways) getting all of his cavities filled! Poor little guy has huge teeth, packed into a tiny little mouth and has such a...Keep Reading Here »
We went to the UVA Heart Center Picnic a few weekends ago. We thought about going last year, but it was the weekend after Owain was released from the hospital and we were so happy to have him home we had no desire to go back after everything we had be through. It was...Keep Reading Here »
This is an on going list of some of my favorite Congenital Heart Defect Resources and Organizations. If you know of another website that you think should be on this list, let me know. Mended Little Hearts of Charlottesville! Mended Little Hearts of Central Virginia Mended Little Hearts National Saving Little Hearts Kids...Keep Reading Here »
Honey Nut is the Latest and Last Addition to the Family. She is our 5th Little Nut and our 1st and only Little Girl. She spends her days pretty much running after her brothers and pretending she can talk. She has no trouble being heard around here and loves her big brothers as much as they love her. Right now it is pretty much her job to just hang out and be cute.
Owain is my 3 year old, my Little Heart Kid & my Hero. He is Double Inlet, Single Ventricle with Pulmonary Atresia and Malpositioned Great Arteries. He has had 3 out of 3 Open Heart surgeries needed to “fix” his heart. The Heart is an amazing thing and I never know what to expect. He also has asthma and we are doing our best to manage that. He finally had his last surgery on June 24th 2011.
Wee Nut and Honey Nut have become a pair of serious partners in crime. The two of them together can cause more trouble than the older three. They keep me on my toes!
Owain is our Miracle Baby. You can read his Congenital Heart Defect Story from the very beginning if you click on his picture.
E Nut is 8 and wicked crazy! He is my fearless child and spent much of his life thinking if he could just jump high enough he could fly. If I let him, he would play Wii all day long, that is IF I let him. He has no trouble waking up before 6am and made me a morning person when I never thought I would be. He recently lost his first tooth and FINALLY feels like a Big Kid. E Nut and Wing Nut are the Big Kids around here and while they fight like enemies, they love like brothers.
After his Fontan on June 24th he went home after 6 days! Now we are back in the hospital waiting for fluid to stop draining from around his right lung.
Little Nut Nut is my 5 year old boy genius and totally freaks me out with the things he can do. What type of child learns to read at 3 years old?!? He is his Big Brothers shadow and wants to do what ever they do. He doesn't have any trouble letting everyone around here know what he thinks, has no inner voice and talks non-stop all day long. If he thinks it, he says it. He says things like "I love life" and "I am made of Awesome" and always makes me smile, even when I don't want to.
My Wing Nut, 10 years old, is my first born and is a Lego Fanatic. He talks in his sleep about "interesting number combinations" and insists that he is going to work for Lego when he grows up. From the moment he gets the current issue of Lego magazine in the mail, he anticipates the arrival of the next one. He has crazy mood swings, has recently been diagnosed with ADHD but I am not so sure that is correct. He is considered Failure to Thrive and I struggle everyday to get him to gain weight, he keeps getting taller, but not gaining any weight. I think if we can figure out why he his Failure to Thrive, his ADHD will go away.
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