Glenn Procedure
Peds Cardiology Visit on a 2 Year Surgerversary and a Thankful Thursday
When I woke up this morning, the only thing I had on my mind was Owain’s Peds Cardiology check up. I always get very anxious on his check up days. I always worry that things are not going as well as they seem. Or that there is something happening right in front of me...Keep Reading Here »
Thankful Thursday
Well, for once this week has been dragging on. I feel like the weekend will never come. We still haven’t gotten our tree, first The Sickness hit our house during Thanksgiving weekend and then last weekend we got a snow storm which put the kibosh on driving to the top of the mountain to...Keep Reading Here »
A Year Ago Today My Wee Nut Had His Second Heart Surgery
I didn’t realize until last night when I was think about his surgery last year, that the anniversary of his second surgery was another contributing factor in my feeling down. I think it affected me differently because it was something we had spend months planning. It was so much different than when Owee was...Keep Reading Here »
Thankful Thursdays
Oops! I almost went through the entire day thinking it was Wednesday! I missed Thankful Thursdays last week because we had one of those Crazy moments that involved my 5 yr old and newborn Ariel…we had to rush out to the pediatrician first thing in the morning and then run over to UVA for...Keep Reading Here »
Owain is home :)
I know I should have posted here sooner, but I haven’t had more than a minute or two to try to sit down at the computer. Owain came home last Wednesday, October 15th. It is amazing that he was only in the hospital for a week and a day after having major bilateral open...Keep Reading Here »
Owain is recovering slowly
Owain is still in the PICU. We were hoping that he would be out on the floor by now, but his lungs and a high fever have been keeping him here. His fever has been dropping most of this evening. He has some fluid both in his lungs and around his lungs, so his...Keep Reading Here »
Another Successful Surgery :)
Owain came out of surgery around noon today,Yippie! He is doing well. He still hasn’t woken up yet & is still on a bit of pain killers. We are waiting for his pain meds to wear off and most likely they will be able to take him off the respirator early this evening. He...Keep Reading Here »
Owain’s Surgery is Next Week
We are getting ready for Owain’s next surgery. He is going in for the Glenn Procedure. I was looking for a good definition to explain it better, but I am not finding one right now. I think I mentioned it in earlier posts. We are going back to UVA Children’s Hospital on Monday October...Keep Reading Here »
Owain’s Prayer Quilt
My second son E Nut has a friend from school who’s mother gifted us with a Prayer Quilt for Owain. She and some of her friends from her church made it for him. It came with instructions that reads: “Each knot tied represents a prayer that was said specifically for you. Notice that the...Keep Reading Here »
Honey Nut
Honey Nut is the Latest and Last Addition to the Family. She is our 5th Little Nut and our 1st and only Little Girl. She spends her days pretty much running after her brothers and pretending she can talk. She has no trouble being heard around here and loves her big brothers as much as they love her. Right now it is pretty much her job to just hang out and be cute.
Wee Nut
Owain is my 3 year old, my Little Heart Kid & my Hero. He is Double Inlet, Single Ventricle with Pulmonary Atresia and Malpositioned Great Arteries. He has had 3 out of 3 Open Heart surgeries needed to “fix” his heart. The Heart is an amazing thing and I never know what to expect. He also has asthma and we are doing our best to manage that. He finally had his last surgery on June 24th 2011.
Wee Nut and Honey Nut have become a pair of serious partners in crime. The two of them together can cause more trouble than the older three. They keep me on my toes!
Owain is our Miracle Baby. You can read his Congenital Heart Defect Story from the very beginning if you click on his picture.
E Nut
E Nut is 8 and wicked crazy! He is my fearless child and spent much of his life thinking if he could just jump high enough he could fly. If I let him, he would play Wii all day long, that is IF I let him. He has no trouble waking up before 6am and made me a morning person when I never thought I would be. He recently lost his first tooth and FINALLY feels like a Big Kid. E Nut and Wing Nut are the Big Kids around here and while they fight like enemies, they love like brothers.
Thank you for praying!
After his Fontan on June 24th he went home after 6 days! Now we are back in the hospital waiting for fluid to stop draining from around his right lung.
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Little Nut Nut
Little Nut Nut is my 5 year old boy genius and totally freaks me out with the things he can do. What type of child learns to read at 3 years old?!? He is his Big Brothers shadow and wants to do what ever they do. He doesn't have any trouble letting everyone around here know what he thinks, has no inner voice and talks non-stop all day long. If he thinks it, he says it. He says things like "I love life" and "I am made of Awesome" and always makes me smile, even when I don't want to.
Wing Nut
My Wing Nut, 10 years old, is my first born and is a Lego Fanatic. He talks in his sleep about "interesting number combinations" and insists that he is going to work for Lego when he grows up. From the moment he gets the current issue of Lego magazine in the mail, he anticipates the arrival of the next one. He has crazy mood swings, has recently been diagnosed with ADHD but I am not so sure that is correct. He is considered Failure to Thrive and I struggle everyday to get him to gain weight, he keeps getting taller, but not gaining any weight. I think if we can figure out why he his Failure to Thrive, his ADHD will go away.
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