Open Heart Surgery

How To Give Your Heart Baby Their Daily Aspirin

How To Give Your Heart Baby Their Daily Aspirin

Your newborn has just come home from the hospital after having Heart Surgery and now it is up to you to take care of your baby. In the hospital, either you had help giving him his medications or the nurses did it for you. You have been given all the information you need to...
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Owain is Doing Great & Recovering Quickly!

Owain is recovering very well & sooo very quickly! I am amazed at how much quicker this recovery is. I did mistake his crankiness with a double ear infection for crankiness because of his surgery…which left me with bad mommy feelings, but I know I can’t know everything, so I am working on forgiving...
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Owain is home :)

I know I should have posted here sooner, but I haven’t had more than a minute or two to try to sit down at the computer. Owain came home last Wednesday, October 15th. It is amazing that he was only in the hospital for a week and a day after having major bilateral open...
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Owain is recovering slowly

Owain is still in the PICU. We were hoping that he would be out on the floor by now, but his lungs and a high fever have been keeping him here. His fever has been dropping most of this evening. He has some fluid both in his lungs and around his lungs, so his...
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Another Successful Surgery :)

Owain came out of surgery around noon today,Yippie! He is doing well. He still hasn’t woken up yet & is still on a bit of pain killers. We are waiting for his pain meds to wear off and most likely they will be able to take him off the respirator early this evening. He...
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Owain’s Glenn Procedure Surgery is Next Week

We are getting ready for Owain’s next surgery. He is going in for the Glenn Procedure. I was looking for a good definition to explain it better, but I am not finding one right now. I think I mentioned it in earlier posts. We are going back to UVA Children’s Hospital on Monday October...
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Owain’s Prayer Quilt

My second son E Nut has a friend from school who’s mother gifted us with a Prayer Quilt for Owain. She and some of her friends from her church made it for him. It came with instructions that reads: “Each knot tied represents a prayer that was said specifically for you. Notice that the...
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Owain is home!!!

He actually came home last Thursday May 29th! We have been getting settled, going to different Dr visits and trying to get some rest. The kids are so excited to have him home. It was very strange for them to be with out their parents for so long. They were just as disappointed every...
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Still waiting for Owain to come home…

Owain is still at UVA & we are starting to feel like he will never come home. I have been leaving as early as I can after getting the kids off to school & staying until 7pm or later so that I can nurse him. He has had some really good days with his...
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Getting better every day!

Lots of changes have happened since last Friday! Friday night when they moved Owain back to NICU. We first got moved from NICU to PICU because they ran out of room in NICU & they send heart babies to PICU after surgery, so it that is just the way they do it. So now...
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Owain is getting better

Owain is doing much better this week! He is pink & plump & full of life! They were able to take him off of the respirator yesterday! It is so wonderful to be able to see his face again & to hear him cry. He is still a bit of a cranky head, but...
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Surgery went perfectly!!

Just wanted to pop in quickly & let every one know that Owain’s surgery on Monday went perfectly & he is doing great. They have been able to start taking him off of different meds & are hoping to have him off the respirator by tomorrow. He looks wonderful! It is such a relief...
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Surgery moved up to Monday moring

We just heard from one of the Cardiac fellow & Owain is not responding to the meds as well today as he was yesterday. So surgery has been pushed up to first thing tomorrow morning. He is first on the schedule & he will be going down for prep around 6:30am & starting surgery...
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Owain is Doing Better

A lot has happened in the past few days. Some good and some not so good. He has been in critical but stable condition for the past few days. We were excited when it was determined that an interventionist could try a cath procedures which is a less invasive procedure. That was scheduled for...
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