Owain’s Update

I am thankful to be able to say that we have some good news today. Yesterday was a good day for Owain, he was stable all day with very few scary moments. Over Monday night he blew out all his IVs in his hands & feet, so they added a centeral line for everything. It was frustrating because they had just started when we got there & we had to wait for hours to see him. But this is good since he is one step closer to surgery.

The issue with his intestines started to clear up yesterday! That is the one thing that was really holding him back from getting surgery.

The whole team working on his case is meeting this morning at 10 & we will then get all the details of exactly what is going on. It looks like we will be able to schedule his surgery for later this week.

I need to correct myself, yesterday I said that it was chronic heart disease when actually his official diganosis is Congenital Heart Defect. There is has just been so much information coming & going from dozens of doctors I got a bit confused.

So Owain has a Congenital Heart Defect. Of course I have spent a fair amount of time beating myself up, thinking that it was something I did, when I know that I did nothing wrong. Every one keeps telling me that there is nothing that could have prevented this, that I did everything right. It is just so hard sometimes to believe that when it was my job to keep him safe & healthy. The doctors have clearly said many times that things like this just happen & that everything will be OK. I am doing everything I can to believe that.

I want to thank every one for their calls & support! I am sorry if I can’t call you back right now, please know that I have been getting your messages & call any time. We are not allowed to even have our cell phones on when we are in the PICU, but I have listened to your messages.

I wish I had more time to update, but we have to go now.

I love you all!