Time is Slipping Away, but Owain is Doing Fabulous

Owain is doing fabulous. FABULOUS!

His appointments have been scheduled every 2 weeks now, and while there is still a bit of fluid around his Heart, it is no more than when he was discharged last month. He has an appointment tomorrow and if there is no more fluid then we will cut his lasix down and drop his aldactone all together. He is still on the low fat diet, but he stopped losing weight and is gaining very slowly and/or at least maintaining his weight.

He is very understanding for a 3 year old about some of the foods that he wants to eat but can not. It is pathetically easy to explain that “this food might make fluid build up in your chest, and it might make your belly hurt with all the fluid building up. You don’t want to have to go get another chest tube do you?” His answer is usually “Um, no thank you”

What a smart, understanding, brave little boy I have, I am incredibly proud of this kid!

Back to the lighter side of life…My Tribe is doing AWESOME, even in the middle of all this. Homeschool is set up a little different this year now that there are 3 kids to officially teach and we are all overflowing with stupid amounts of excitement about doing lessons. I love teaching my children and watching them soak it all in.