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I am Not as Strong as I appear. I enjoy weakness from time to time. We are a homeschooling, special needs family of 6. My 4th son has a Congenital Heart defect, and my oldest has ADHD. I am a survivor of Adultery and mental abuse. I learned that you never really know someone until you are strong enough to stand up and walk away. I love and protect my children, with everything I have. My life might seem unbelievable, but I couldn't make this shit up if I tried! Stick around & let's get to know each other.

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Things Are Not Looking Good for Owain

And I am getting frustrated.

Last night the ER doc thought he had an ear infection, but the doctor on call came in and said no ear infection. His pediatrician came in this morning and said that at least one ear was infected and the other one was red and swollen. That explains the fever at night, but he has had no fever since early this morning.

His RSV test came back negative. Not sure if I mentioned that earlier.

He is miserable.

He has croup again with O2 sats in the low 80’s last night and through this morning. In the past couple of hours I have pretty much been listing to his O2 alarm go off. In the ER last night we were down to 1/2 liter of oxygen, but by this morning he was up to 1 liter, then 1 1/2 liters and now we just increased it to 2 liters. And he is still dropping down around 77.

And they just came in and increased his oxygen to 3 liters.

Sigh.

The steroids they gave him for his croup has made him miserable, unbearably so. Flailing, kicking, “hold me mommy” “stop touching me mommy” “cuddle me mommy” “STOP it mommy”. Back and forth. He has no idea what he wants. I got him some Tylonol a few hours ago and that helped just long enough to help him settle down and fall asleep. I got to sleep for about 45 minutes and we both could have slept for much longer. But then respiratory came in and woke us up for his Xopenex treatment. Which did nothing for him and now he is just as miserable, but on 3 liters of O2.

We can’t figure out why he is on breathing treatments, a strong steroid to help his croup, antibiotics for he ear infection and fluids because he didn’t want to eat or drink anything…and still have low oxygen.

This morning they took him off of O2 and he dropped down to 72% on room air. I don’t even want to guess what he is at right now.

He smiled at me for a brief moment when his nurse gave him a popsicle, but after 4-5 bites, he was done. It was good to see him smile though 🙂

For the most part, he has been staring glassy eyed at the Toy Story movies that I remembered to pack when he is not crying and begging for me to either do something for him, or stop doing something for him.

He is not eating and will only drink soy milk. He nibbled on a dinner roll for about 2 hours, and I had to eventually pry a crumbly mess from his fist.

He is a different kind of blue than I have seen in a very long time. Usually when he is having trouble breathing, his fingers and toes get blue. But today, he has this all over pale, dusky kind of coloring to him.

And now he is asleep and still alarming with his O2 dropping down to 77. I just looked at the oxygen valve on the wall, it only goes up to 3.5 liters. That kind of concerns me that it looks like there is not much more we can give him.

His pediatrician will be in when office hours are over.

I think that peds cardiology over at UVa has been contacted. I don’t know if that means that they will be monitoring him from UVa or if we will be transporting him to UVa.

Either way, I am starting to get restless, frustrated and wishing that he would just wake up and get better. My heart is beating faster and I am starting to get a sinking feeling in my stomach.

Calling on my prayer buddies to help us out and send some prayers our way.

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13 Responses to Things Are Not Looking Good for Owain

  1. Mandy Roberts on March 1, 2011 at 9:32 am

    I am so sorry to hear this news. Praying for a quick recovery and lots of much needed sleep, along with sanity, and peace, and so many other things!

  2. Rebecca Kelley on February 28, 2011 at 11:01 pm

    Prayers for Owain and I agree, get that cardio on the phone, they need to figure out what to do for him. Hoping you hear soon and that the meds work and he starts to rebound.
    Rebecca Kelley recently posted..watching our future hurtle towards usMy Profile

  3. Stacey Donaldson on February 28, 2011 at 8:46 pm

    I’m sorry to hear that Owain isn’t feeling well. Sending prayers your way.

  4. Cheryl on February 28, 2011 at 7:57 pm

    Owain is in my prayers. Poor lil buddy!! And poor mommy Lisa too!

    Hugs

    Cheryl

  5. Ashley Hudson on February 28, 2011 at 7:28 pm

    Lisa, I’m sending SO many positive vibes and good thoughts Owain’s way. I know that sinking, scared feeling… please make sure that all of the doctors take your feeling seriously, okay? I know that you will.

    I wish I could do something.

  6. Charity on February 28, 2011 at 7:14 pm

    Oh yes, get the cardiologist on the phone! I so hope for some relief for both of you. You don’t need any more worries about your precious heart baby. Keep us posted…

  7. Lynn Pearson on February 28, 2011 at 6:43 pm

    I’m with Stefenie. Definitely get up with the Cardiologist! I know you probably have. Praying for that sweet little one and you. ((Heart Hugs))

  8. Stephanie on February 28, 2011 at 6:22 pm

    Praying, will post this on my FB wall for my prayer warriors to rally around you and Owain also! Hugs, love and prayers!!!!!!

  9. Kristine on February 28, 2011 at 6:21 pm

    Breaks my heart to hear him so uncomfortable. I am sending lots of love and lots of prayers. <3
    Kristine recently posted..Living Through the FogMy Profile

  10. Therese on February 28, 2011 at 6:06 pm

    So sorry to hear this news. Will be lifting Owain up in prayers.
    Therese recently posted..This and ThatMy Profile

  11. Lisa @All That and a Box of Rocks on February 28, 2011 at 5:38 pm

    Oh, I know that feeling well. Hate it. Praying!!
    Lisa @All That and a Box of Rocks recently posted..Do you Speekee the SpanishMy Profile

  12. Stefenie on February 28, 2011 at 5:27 pm

    How very frustrating indeed. I too would be concerned. In fact I am overly concerned for all of you right now. Not trying to tell you what to do and maybe you have already done this but I would get on the phone with your cardiologist to get their opinion. 3 liters of O2 is troublesome especially with the blue/dusky all over color. 🙁

    Saying many prayers for all of you!!! {{{HUGE HUG}}}
    Stefenie recently posted..A much anticipated updateMy Profile

  13. Brenda (mamabegood) on February 28, 2011 at 4:34 pm

    Prayers, prayers, prayers.
    Brenda (mamabegood) recently posted..Library LessonsMy Profile

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